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生来即为捐赠:拉丁美洲“救星同胞”监管提案

Born to donate: proposals for "savior sibling" regulation in Latin America.

作者信息

Zúñiga-Fajuri Alejandra

机构信息

Centro de Investigaciones de Filosofía del Derecho y Derecho Penal, Escuela de Derecho, Universidad de Valparaíso. Valparaíso, Chile. Universidad de Valparaíso Centro de Investigaciones de Filosofía del Derecho y Derecho Penal Escuela de Derecho Universidad de Valparaíso Valparaíso Chile.

出版信息

Colomb Med (Cali). 2018 Sep 30;49(3):228-235. doi: 10.25100/cm.v49i2.3619.

DOI:10.25100/cm.v49i2.3619
PMID:30410198
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6220490/
Abstract

A Savior Sibling is a child who is born to provide an organ, bone marrow or cell transplant, to a sibling that is affected with a fatal disease. There are created with the fertilization and pre-implantation genetic diagnosis and, in the process, the ethical standards for organ donation of children become less demanding. Therefore, we propose that the authorization of the technique considers, unavoidably, the opinion of an impartial third party that can guarantee the welfare of the child. We develop a critical analysis of the laws that regulate the creation of babies to serve as organ donors. We evaluate under what circumstances the organizations that play a part in the decisions, fulfill the ethical standards to allow the organ donation of children.

摘要

“救星同胞”是指为患有致命疾病的同胞提供器官、骨髓或细胞移植而出生的孩子。他们是通过受精和植入前基因诊断孕育而来的,在此过程中,儿童器官捐赠的伦理标准要求降低。因此,我们建议,该技术的授权不可避免地要考虑能够保障儿童福祉的公正第三方的意见。我们对规范为充当器官捐赠者而孕育婴儿的法律进行了批判性分析。我们评估了在哪些情况下,参与决策的组织符合允许儿童器官捐赠的伦理标准。

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1
Born to donate: proposals for "savior sibling" regulation in Latin America.生来即为捐赠:拉丁美洲“救星同胞”监管提案
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本文引用的文献

1
Allogenic bone narrow transplantation in sickle-cell diseases.镰状细胞病中的同种异体骨髓移植。
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Living related donor liver transplantation in children.儿童活体亲属供肝肝移植
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4
WHO Guiding Principles on Human Cell, Tissue and Organ Transplantation.世界卫生组织《人类细胞、组织和器官移植指导原则》
Cell Tissue Bank. 2010 Nov;11(4):413-9. doi: 10.1007/s10561-010-9226-0.
5
Saviour embryos? Preimplantation genetic diagnosis as a therapeutic technology.救世主胚胎?胚胎植入前遗传学诊断作为一种治疗技术。
Reprod Biomed Online. 2010 May;20(5):667-74. doi: 10.1016/j.rbmo.2009.12.015. Epub 2009 Dec 16.
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[The case of a living liver donor who was underage: psychiatric issues and evaluation].[一名未成年活体肝供体的案例:精神问题与评估]
Seishin Shinkeigaku Zasshi. 2009;111(8):930-7.
7
Britain's new preimplantation tissue typing policy: an ethical defence.英国新的植入前组织配型政策:伦理辩护。
J Med Ethics. 2006 May;32(5):278-82. doi: 10.1136/jme.2004.011213.
8
Preimplantation HLA typing: having children to save our loved ones.植入前HLA分型:通过生育来拯救我们所爱的人。
J Med Ethics. 2005 Oct;31(10):582-6. doi: 10.1136/jme.2004.010348.
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Preimplantation genetic diagnosis: the ethics of intermediate cases.
Hum Reprod. 2005 Dec;20(12):3261-6. doi: 10.1093/humrep/dei222. Epub 2005 Aug 25.
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Ethical and legal aspects of using an identical twin as a skin transplant donor for a severely burned minor.
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