Qiu Weihong, Guan Hongli, Chen Zhaocong, Yu Yong, Wu Huixiang, Yu Wilson S, Qiu Guorong, Feng Xiaohuan, Lee Kathy Y S
a Department of Rehabilitation Medicine , The Third Affiliated Hospital of Sun Yat-sen University , Guangzhou , China.
b Department of Rehabilitation Medicine , Panyu Center Hospital , Guangzhou , China.
Top Stroke Rehabil. 2019 Mar;26(2):106-112. doi: 10.1080/10749357.2018.1544842. Epub 2018 Nov 19.
Aphasia is a common outcome of stroke affecting one-third of the post-stroke population in China. While the quality of life (QOL) may be affected, care is often inadequately guided due to lack of validated measure for Chinese population with stroke-induced aphasia. This study aimed to develop a Chinese-version of the Stroke and Aphasia Quality of Life-39 generic version (SAQOL-39g) and evaluate its feasibility, reliability, and validity in Chinese patients with stroke-induced aphasia.
The process of translation and adaptation suggested by WHO was used to develop the Chinese-version of SAQOL-39. We evaluated the feasibility, reliability, and validity of the scale in 84 aphasia patients and their proxies by assessing the internal consistency of the test items, test-retest consistency, and the structural validity of data.
The self-report and the proxy-report form were completed within 21.4 and 13.3 min on average, respectively. Physical, communication, and psychological subdomains were extracted as three common factors. The Cronbach's alpha coefficients of overall domain and subdomains for both forms ranged from 0.879 to 0.950, indicating high internal consistency. The intraclass correlation coefficients ranged from 0.804 to 0.987 for overall domain and subdomains of the forms. No significant difference was found between two forms.
The Chinese-version SAQOL-39g has excellent reliability, validity, and feasibility for measuring the QOL of Chinese post-stroke aphasia patients. The consistency between self-report and proxy-report forms was good, implying that the proxy-report form can be used to assess the QOL of post-stroke aphasia patients.
失语症是中风常见的后遗症，在中国中风患者中有三分之一受其影响。虽然生活质量（QOL）可能受到影响，但由于缺乏针对中风后失语症中国患者的有效测量方法，护理往往缺乏充分指导。本研究旨在开发中文版的中风与失语症生活质量通用量表（SAQOL-39g），并评估其在中国中风后失语症患者中的可行性、可靠性和有效性。
采用世界卫生组织建议的翻译和改编流程来开发SAQOL-39中文版。我们通过评估测试项目的内部一致性、重测一致性和数据的结构有效性，对84名失语症患者及其代理人进行了该量表的可行性、可靠性和有效性评估。
自我报告表和代理人报告表平均分别在21.4分钟和13.3分钟内完成。身体、沟通和心理子领域被提取为三个共同因素。两种形式的整体领域和子领域的Cronbach's α系数范围为0.879至0.950，表明内部一致性较高。两种形式的整体领域和子领域的组内相关系数范围为0.804至0.987。两种形式之间未发现显著差异。
中文版SAQOL-39g在测量中国中风后失语症患者的生活质量方面具有出色的可靠性、有效性和可行性。自我报告表和代理人报告表之间的一致性良好，这意味着代理人报告表可用于评估中风后失语症患者的生活质量。
