患者如何重视和优先考虑患者门户的功能和使用因素？一项对慢性病患者的联合分析研究。
How do patients value and prioritize patient portal functionalities and usage factors? A conjoint analysis study with chronically ill patients.
机构信息
Center for Human Factors Engineering of Health Information Technology, Department of Medical Informatics, PO Box 22660, 1100, DD, Amsterdam, The Netherlands.
Department of Medical Informatics, Amsterdam Public Health research institute, Amsterdam UMC, University of Amsterdam, PO Box 22660, 1100, Meibergdreef 9 , DD, Amsterdam, The Netherlands.
出版信息
BMC Med Inform Decis Mak. 2018 Nov 21;18(1):108. doi: 10.1186/s12911-018-0708-5.
BACKGROUND
Patient portal use can be a stimulant for patient engagement. Yet, the heterogeneous landscape of tethered patient portals, is a major barrier to further portal development and implementation. A variety in portal access means, functionalities, usability and usefulness exists; without having accurate sight on patient perspectives. We aimed to get insights on possible coherence between patients' preferred usage factors of portals and patients' prioritization of functionalities, within the complexity of their disease management across different healthcare organizations.
METHODS
A conjoint analysis questionnaire was sent to patient panels of two large patient associations in The Netherlands, centered on heart and vascular diseases and lung diseases.
RESULTS
Of 1294 patient respondents, 81% were 55+ years old and 49% were 65+ years old. Overall respondents significantly prioritized user-friendly access to a portal, via a laptop or desktop. Patients aged < 65 were less negative about using tablets to access a portal compared to the total respondents. Patients had no preference for a digital interoperable export functionality; most respondents preferred to create printable overviews. Built-in publication delay of two weeks for medical information was not preferred. Our results show no significant preference of patients between 'instant publication' versus 'publication after new information has been explained by a healthcare provider'. Overall respondents and experienced portal users had a strong preference to be able to communicate with their provider via a portal and to use a portal providing information from multiple providers. Lung patients preferred information from one provider and did not require the possibility to ask online questions.
CONCLUSIONS
Heart and vascular patients as well as lung patients prefer similar technical patient portal aspects, independent of their medical condition. Yet, in current portals consistency on this matter is lacking. It is highly assumable that offering a more consistent user-experience across the variety of patient portals could help increase patient portal acceptance, ultimately helping to stimulate patient engagement via patient portal use. We further affirm the need for customization on medical information publication and sharing information of various providers through patient portals, where information provision can be adapted to preferences of patients related to their medical condition(s).
背景
患者门户的使用可以刺激患者参与。然而，连接患者门户的异构景观是进一步开发和实施门户的主要障碍。门户的访问方式、功能、可用性和有用性各不相同；而没有准确了解患者的观点。我们旨在深入了解患者对门户的首选使用因素与患者在不同医疗保健组织中管理疾病的复杂性下对功能的优先级之间可能存在的一致性。
方法
一项联合分析问卷发送给荷兰两个大型患者协会的患者小组，重点关注心脏和血管疾病以及肺部疾病。
结果
在 1294 名患者应答者中，81%的人年龄在 55 岁以上，49%的人年龄在 65 岁以上。总体应答者非常重视通过笔记本电脑或台式机方便地访问门户。年龄<65 岁的患者相比总应答者，使用平板电脑访问门户的态度不那么消极。患者对数字互操作导出功能没有偏好；大多数应答者更喜欢创建可打印的概述。内置的两周医学信息发布延迟也不受欢迎。我们的结果显示，患者在“即时发布”与“在医疗保健提供者解释新信息后发布”之间没有明显偏好。总体应答者和有经验的门户用户强烈希望能够通过门户与提供者进行沟通，并使用提供来自多个提供者信息的门户。肺部疾病患者更喜欢来自一位提供者的信息，并且不需要在线提问的可能性。
结论
心脏和血管疾病患者以及肺部疾病患者对类似的技术患者门户方面有类似的偏好，而不受其医疗状况的影响。然而，当前的门户在这方面缺乏一致性。可以假设，通过提供各种患者门户之间更一致的用户体验，可以帮助提高患者门户的接受度，最终通过患者门户的使用帮助刺激患者参与。我们进一步确认需要定制医疗信息发布和通过患者门户共享各种提供者的信息，在这种情况下，可以根据患者的医疗状况及其偏好来调整信息提供。
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