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本文引用的文献

1
Qualitative study of challenges of caring for a person with heart failure.对心力衰竭患者护理挑战的定性研究
Geriatr Nurs. 2018 Jul-Aug;39(4):443-449. doi: 10.1016/j.gerinurse.2017.12.017. Epub 2018 Feb 14.
2
End-of-Life Discussions in Patients With Heart Failure.心力衰竭患者的临终讨论。
J Card Fail. 2017 Nov;23(11):821-825. doi: 10.1016/j.cardfail.2017.08.451. Epub 2017 Aug 31.
3
Behind the smile: qualitative study of caregivers' anguish and management responses while caring for someone living with heart failure.微笑背后:对照顾心力衰竭患者的照料者的痛苦及应对方式的定性研究
BMJ Open. 2017 Jul 20;7(7):e014126. doi: 10.1136/bmjopen-2016-014126.
4
Positive emotions in caring for a spouse: a literature review.照顾配偶过程中的积极情绪:一项文献综述。
Scand J Caring Sci. 2018 Mar;32(1):45-55. doi: 10.1111/scs.12452. Epub 2017 May 24.
5
The lived experience of caregivers of persons with heart failure: A phenomenological study.心力衰竭患者照顾者的生活体验:一项现象学研究。
Eur J Cardiovasc Nurs. 2017 Oct;16(7):638-645. doi: 10.1177/1474515117707666. Epub 2017 Apr 27.
6
Heart Disease and Stroke Statistics-2017 Update: A Report From the American Heart Association.《2017年心脏病和中风统计数据更新:美国心脏协会报告》
Circulation. 2017 Mar 7;135(10):e146-e603. doi: 10.1161/CIR.0000000000000485. Epub 2017 Jan 25.
7
Discordance of Patient-Reported and Clinician-Ordered Resuscitation Status in Patients Hospitalized With Acute Decompensated Heart Failure.急性失代偿性心力衰竭住院患者自我报告与临床医生下达的复苏状态的不一致性
J Pain Symptom Manage. 2017 Apr;53(4):745-750. doi: 10.1016/j.jpainsymman.2016.11.010. Epub 2017 Jan 3.
8
Patient Activation in Acute Decompensated Heart Failure.急性失代偿心力衰竭患者的激活。
J Cardiovasc Nurs. 2017 Nov/Dec;32(6):560-567. doi: 10.1097/JCN.0000000000000367.
9
A longitudinal view of factors that influence the emotional well-being of family caregivers to individuals with heart failure.影响心力衰竭患者家庭照顾者情绪健康的因素的纵向研究。
Aging Ment Health. 2017 Aug;21(8):844-850. doi: 10.1080/13607863.2016.1168361. Epub 2016 Apr 14.
10
Defective support network: a major obstacle to coping for patients with heart failure: a qualitative study.有缺陷的支持网络:心力衰竭患者应对的主要障碍:一项定性研究
Glob Health Action. 2016 Apr 1;9:30767. doi: 10.3402/gha.v9.30767. eCollection 2016.

心力衰竭患者的家庭照顾者的积极体验和自我收获。

Positive Experiences and Self-Gain Among Family Caregivers of Persons With Heart Failure.

机构信息

Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery.

Department of Cardiovascular Medicine, Mayo Clinic, Rochester, Minnesota.

出版信息

Gerontologist. 2019 Sep 17;59(5):e433-e440. doi: 10.1093/geront/gny162.

DOI:10.1093/geront/gny162
PMID:30535012
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6850888/
Abstract

BACKGROUND

The majority of aging adults with heart failure (HF) receive support from a family caregiver. Most literature has emphasized the stressors and burden of caregiving, with less focus on positive self-gains associated with caregiving.

METHODS AND RESULTS

Using an explanatory sequential design, we assessed self-gain by administering a survey to caregivers of a person with HF (n = 108) and then conducted qualitative semi-structured interviews with a subset (n = 16) of these caregivers. Quantitative results indicate spousal caregivers, and caregivers with higher preparedness and higher mastery had greater odds of reporting high self-gain. Content analysis of qualitative data revealed 3 themes of self-gain including (i) caregiving as a means to enhancing relationships, (ii) success in negotiating care and healthy behaviors with people with HF, and (iii) caregiving as a means of preparing caregivers for the future.

CONCLUSIONS

HF caregivers experience a range of positive self-gains and the ability to find meaning in the stressful caregiving role. Caregivers' ability to garner intrinsic gains from their role can have important benefits well after caregiving has ended.

摘要

背景

大多数患有心力衰竭(HF)的老年患者都得到了家庭护理人员的支持。大多数文献都强调了护理工作的压力和负担,而较少关注与护理相关的积极的自我收获。

方法和结果

采用解释性序贯设计,我们通过对 HF 患者的护理人员(n=108)进行调查评估自我收获,然后对其中一部分(n=16)护理人员进行定性半结构访谈。定量结果表明,配偶护理人员、准备程度较高和掌握程度较高的护理人员报告高自我收获的可能性更大。定性数据分析揭示了自我收获的 3 个主题,包括(i)护理是增强人际关系的一种手段,(ii)成功地与 HF 患者协商护理和健康行为,以及(iii)护理是为护理人员未来做准备的一种手段。

结论

HF 护理人员体验到一系列积极的自我收获,并能够在充满压力的护理角色中找到意义。护理人员从其角色中获得内在收益的能力在护理结束后很长一段时间内都有重要的益处。