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2
DEDICATE: proposal for a conceptual framework to develop dementia-friendly integrated eCare support.奉献:开发面向痴呆症的综合电子关怀支持的概念框架建议。
Biomed Eng Online. 2018 Sep 12;17(1):121. doi: 10.1186/s12938-018-0552-y.
3
Focusing on transitions of care: A change is here.聚焦照护转型:变革已然来临。
Neurol Clin Pract. 2016 Apr;6(2):183-189. doi: 10.1212/CPJ.0000000000000207.
4
Family Caregiving: A Vision for the Future.家庭护理:未来的愿景。
Am J Geriatr Psychiatry. 2018 Mar;26(3):358-363. doi: 10.1016/j.jagp.2017.06.023. Epub 2017 Jul 4.
5
Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research.为痴呆症患者提供更好的姑息治疗:跨学科研讨会的总结,重点介绍当前的差距和对未来研究的建议。
BMC Palliat Care. 2017 Jul 14;17(1):9. doi: 10.1186/s12904-017-0221-0.
6
The Psychosocial Implications of Managing Work and Family Caregiving Roles: Gender Differences Among Information Technology Professionals.兼顾工作与家庭照料角色的社会心理影响:信息技术专业人员中的性别差异
J Fam Issues. 2017 Aug;38(11):1495-1519. doi: 10.1177/0192513X15584680. Epub 2015 May 5.
7
A patient's experience in dementia care: Using the "lived experience" to improve care.一位患者在痴呆症护理中的经历:利用“亲身经历”改善护理。
Can Fam Physician. 2017 Jan;63(1):22-26.
8
Patient and caregiver goals for dementia care.痴呆症护理的患者及照护者目标。
Qual Life Res. 2017 Mar;26(3):685-693. doi: 10.1007/s11136-016-1471-7. Epub 2016 Dec 20.
9
Managing Your Loved One's Health: Development of a New Care Management Measure for Dementia Family Caregivers.管理亲人健康:为痴呆症家庭照顾者开发新的护理管理措施。
J Appl Gerontol. 2018 May;37(5):620-643. doi: 10.1177/0733464816657472. Epub 2016 Jul 5.
10
Exemplary Care and Learning Sites: A Model for Achieving Continual Improvement in Care and Learning in the Clinical Setting.模范护理与学习场所:临床环境中实现护理与学习持续改进的模式
Acad Med. 2016 Mar;91(3):354-9. doi: 10.1097/ACM.0000000000001072.

中国痴呆症家庭照顾者的模范护理

Exemplary Care among Chinese Dementia Familial Caregivers.

作者信息

Lau Bobo Hi Po, Lou Vivian Weiqun, Cheung Karen Siu Lan

机构信息

Department of Counselling and Psychology, Hong Kong Shue Yan University, Hong Kong, China.

Sau Po Centre on Ageing, University of Hong Kong, Hong Kong, China.

出版信息

Healthcare (Basel). 2018 Dec 5;6(4):141. doi: 10.3390/healthcare6040141.

DOI:10.3390/healthcare6040141
PMID:30563183
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6315822/
Abstract

OBJECTIVE

This study investigates the feasibility of using the Exemplary Care Scale (ECS) among Chinese dementia familial caregivers, and reports its psychometric properties.

METHOD

Back translation was used to develop the Chinese version of ECS (C-ECS). Three hundred and ninety-seven dyads of caregivers and their relatives with dementia responded to an assessment battery which included questions on care recipients' cognition, behavioral and psychological symptoms, daily activities assistance, social support, and caregiver well-being.

RESULTS

Results of an exploratory principal component analysis revealed two subscales in the 11-item C-ECS: considerate caregiving and preserving esteem. C-ECS and its subscales demonstrated sufficient reliability, as well as criteria-related validity through its association with care recipient's cognition and health, and caregivers' well-being and social support.

DISCUSSION

Our findings provide preliminary support to C-ECS as a reliable and valid measure of exemplary caregiving among Hong Kong Chinese familial dementia caregivers. In the light of the increasing importance of familial care in dementia care planning, we recommend the use of this brief scale in regular caregiver assessment in research and service delivery.

摘要

目的

本研究探讨在中国痴呆症家庭照顾者中使用模范照护量表(ECS)的可行性,并报告其心理测量特性。

方法

采用回译法编制ECS中文版(C-ECS)。397对照顾者及其患有痴呆症的亲属完成了一套评估问卷,其中包括关于受照顾者认知、行为和心理症状、日常活动协助、社会支持以及照顾者幸福感的问题。

结果

探索性主成分分析结果显示,11项C-ECS中有两个子量表:体贴照护和维护尊严。C-ECS及其子量表显示出足够的信度,并且通过与受照顾者的认知和健康状况以及照顾者的幸福感和社会支持之间的关联,显示出与标准相关的效度。

讨论

我们的研究结果为C-ECS作为香港华裔家庭痴呆症照顾者中模范照护的可靠有效测量工具提供了初步支持。鉴于家庭照顾在痴呆症护理规划中的重要性日益增加,我们建议在研究和服务提供中的定期照顾者评估中使用这一简短量表。