Noordman Janneke, Driesenaar Jeanine A, van Bruinessen Inge R, Portielje Johanneke Ea, van Dulmen Sandra
Nivel: Netherlands Institute for Health Services Research, Utrecht, Netherlands.
Department of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, Nijmegen, Netherlands.
JMIR Cancer. 2019 Jan 30;5(1):e11556. doi: 10.2196/11556.
Effective patient-provider communication is an important condition to deliver optimal care and it supports patients in coping with their disease. The complex and emotionally loaded setting of oncology care challenges both health care providers (HCPs) and patients in reaching effective communication. ListeningTime is developed for elderly patients with cancer and their oncological HCPs to help them (better) prepare the clinical encounter and overcome communication barriers. ListeningTime is a Web-based preparatory communication tool including modeling videos and has an audio-facility to listen back to recorded encounters.
This study aims to evaluate the usability, perceived usefulness, and actual use of ListeningTime, through the eyes of elderly patients with cancer and their oncological HCPs. If highly rated, the ultimate goal is to make ListeningTime publicly available.
First, members of a panel of elderly cancer survivors and patients (age ≥65 years) were approached to evaluate ListeningTime through a Web-based questionnaire. The usability and perceived usefulness were assessed. Second, ListeningTime was evaluated in real-life practice through a pilot study in 3 Dutch hospitals. In these hospitals, elderly patients with cancer and their oncological HCPs were approached to evaluate ListeningTime through a similar Web-based questionnaire, measuring the perceived usefulness. In addition, we examined log files and user statistics to get insight into how the program was used.
A total of 30 cancer survivors or patients from the patient panel, and 17 patients and 8 HCPs from the hospitals, evaluated ListeningTime. Overall, both panel members and hospital patients were positive about the ListeningTime website, audio-facility, and video fragments. Some patients suggested improvements with respect to the actors' performances in the video fragments and believed that ListeningTime is mainly suitable for non experienced patients. HCPs were also positive about ListeningTime; they valued the video fragments for patients and the audio-facility for patients and themselves. However, providers did not relisten their own recorded encounters. Patients did use the audio-facility to relisten their encounters.
ListeningTime was highly rated, both by patients and their oncological HCPs. As a result, the video fragments of ListeningTime are now made publicly available for elderly patients with cancer through the Dutch website "kanker.nl."
有效的医患沟通是提供最佳医疗服务的重要条件，有助于患者应对疾病。肿瘤护理环境复杂且充满情感因素，这对医护人员和患者实现有效沟通都构成了挑战。“倾听时间”（ListeningTime）是为老年癌症患者及其肿瘤医护人员开发的，旨在帮助他们（更好地）准备临床诊疗并克服沟通障碍。“倾听时间”是一个基于网络的预备沟通工具，包括示范视频，并具备音频功能，可回放录制的诊疗过程。
本研究旨在从老年癌症患者及其肿瘤医护人员的角度评估“倾听时间”的可用性、感知有用性和实际使用情况。如果获得高度评价，最终目标是将“倾听时间”公开提供。
首先，邀请老年癌症幸存者和患者（年龄≥65岁）小组的成员通过基于网络的问卷评估“倾听时间”。评估其可用性和感知有用性。其次，通过在3家荷兰医院进行的试点研究，在实际临床实践中对“倾听时间”进行评估。在这些医院，邀请老年癌症患者及其肿瘤医护人员通过类似的基于网络的问卷评估“倾听时间”，测量其感知有用性。此外，我们检查日志文件和用户统计数据，以了解该程序的使用情况。
共有30名来自患者小组的癌症幸存者或患者，以及来自医院的17名患者和8名医护人员评估了“倾听时间”。总体而言，小组成员和医院患者对“倾听时间”网站、音频功能和视频片段都持积极态度。一些患者建议改进视频片段中演员的表演，并认为“倾听时间”主要适用于经验不足的患者。医护人员对“倾听时间”也持积极态度；他们重视为患者准备的视频片段以及为患者和他们自己提供的音频功能。然而，医护人员没有回放自己录制的诊疗过程。患者确实使用音频功能来回放他们的诊疗过程。
“倾听时间”得到了患者及其肿瘤医护人员的高度评价。因此，“倾听时间”的视频片段现在通过荷兰网站“kanker.nl”向老年癌症患者公开提供。
