Concord Centre for Mental Health, Sydney, NSW.
Kids Neuroscience Centre, Kids Research, Sydney, NSW.
Med J Aust. 2019 Feb;210(3):129-135. doi: 10.5694/mja2.12106. Epub 2019 Feb 10.
Cerebral palsy is a developmental disorder of movement and posture which is often associated with comorbidities. While there is currently a limited range of evidence-based treatments that change the underlying pathology of cerebral palsy, there are many areas in which health care professionals can change the natural history of cerebral palsy and improve participation and quality of life for children with this condition. Early identification has become of paramount importance in the management of cerebral palsy, and it is hoped that it will allow earlier access to cerebral palsy interventions that may improve the natural history of the condition. Common challenges in the management of cerebral palsy include spasticity and dystonia, management of pain, hip surveillance, sleep and feeding, swallowing and nutrition. The six Fs framework (function, family, fitness, fun, friends and future) provides a guide to developing shared goals with families in the management of cerebral palsy.
脑瘫是一种运动和姿势发育障碍，常伴有合并症。虽然目前针对脑瘫的基础病理改变，仅有有限的、基于证据的治疗方法，但在许多领域，医疗保健专业人员可以改变脑瘫的自然病程，提高脑瘫患儿的参与度和生活质量。早期识别在脑瘫的管理中变得至关重要，人们希望它能让患儿更早地获得可能改善病情自然病程的脑瘫干预措施。脑瘫管理中的常见挑战包括痉挛和肌张力障碍、疼痛管理、髋关节监测、睡眠和喂养、吞咽和营养。“六 Fs”框架（功能、家庭、健康、乐趣、朋友和未来）为制定与脑瘫患儿家庭管理相关的共同目标提供了指导。
