The Gehr Family Center for Health Systems Science, Keck School of Medicine, University of Southern California, Los Angeles, USA.
University of North Carolina at Chapel Hill, Gillings School of Global Public Health, Department of Health Behavior, 135 Dauer Drive, 302 Rosenau Hall, CB #7440, Chapel Hill, NC 27599-7440, USA; American Institutes for Research, Research and Evaluation, 100 Europa Drive, Suite 315, Chapel Hill, NC 27517, USA.
Patient Educ Couns. 2019 Jul;102(7):1251-1262. doi: 10.1016/j.pec.2019.02.003. Epub 2019 Feb 10.
OBJECTIVES: This systematic review of contemporary literature sought to better understand racial and ethnic minority patients' shared decision-making (SDM) preferences, challenges and facilitators. METHODS: Data sources were PubMed, CINAHL, Embase, Google Scholar, PsycINFO, Sociological Abstracts, and Web of Science databases for publications between 2011 and 2016. Publications were included if they studied SDM during the clinical encounter for minority adults in clinical care in the United States. We conducted a narrative, descriptive synthesis of each study. RESULTS: From over 5000 publications identified through the search strategy, 18 met eligibility criteria following an abstract and full text (n = 685) review in Covidence. Studies focused on SDM in developing treatment plans (n = 10), and were conducted in primary care (n = 6) or hospital/health system settings (n = 6). Patients' decision preferences ranged from physician-driven altogether or initially, to patient-driven style. A comprehensive list of SDM facilitators and barriers was developed. CONCLUSION: Despite strong policy and research SDM support to increase patient communication and a growing published literature, results suggest lack of representation of minority populations in contemporary literature. PRACTICE IMPLICATIONS: Provider training may be needed to facilitate patient-provider transition from a passive toward a more active SDM engagement over time while confidence, trust and rapport is established.
目的:本系统评价旨在深入了解少数族裔患者在共享决策(SDM)方面的偏好、挑战和促进因素。
方法:检索了 2011 年至 2016 年间 PubMed、CINAHL、Embase、Google Scholar、PsycINFO、Sociological Abstracts 和 Web of Science 数据库中有关美国临床护理中少数族裔成年人临床就诊期间 SDM 的文献。纳入了研究临床就诊期间 SDM 并以美国少数族裔成年人为研究对象的文献。对每篇研究进行了叙述性、描述性综合分析。
结果:通过搜索策略共确定了 5000 多篇文献,经 Covidence 软件对摘要和全文(n=685)进行评估后,有 18 篇符合入选标准。研究主要聚焦于制定治疗计划时的 SDM(n=10),并在初级保健机构(n=6)或医院/医疗系统中进行(n=6)。患者的决策偏好从完全或最初由医生主导,到以患者为主导的模式不等。研究还制定了一个全面的 SDM 促进因素和障碍清单。
结论:尽管有强有力的政策和研究支持 SDM 以增加患者的沟通,但从现有文献来看,少数族裔人群的代表性仍然不足。
实践意义:随着信心、信任和融洽关系的建立,可能需要对提供者进行培训,以促进医患双方从被动式向更积极的 SDM 参与模式过渡。
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