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家长养育食物过敏儿童的体验:定性综述。

Parents Experiences Raising a Child with Food Allergy; A Qualitative Review.

机构信息

Faculty of Medicine and Health Sciences, Department of Health sciences, Norwegian University of Science and Technology (NTNU), Norway.

Faculty of Social and Health Sciences, Inland Norway University of Applied Sciences, Norway.

出版信息

J Pediatr Nurs. 2019 May-Jun;46:e52-e63. doi: 10.1016/j.pedn.2019.02.036. Epub 2019 Mar 8.

Abstract

PROBLEM

Food allergies are one of the fastest growing public health concerns without a cure, affecting approximately 8% of the world's child population. Being the parent of a child with allergies may lead to concerns, and affect everyday life in the family. The aim was to synthesize and describe parents' experiences of living with food allergies in families when one of the children has a food allergy.

ELIGIBILITY CRITERIA

A systematic search using subject terms and text words was performed in Cinahl (Ebsco), Swemed+, Medline (OVID) and Scopus in October 2017. The search was limited to parents with children and adolescents, for the years from 2006 to October 2017.

SAMPLE

One hundred and forty articles were screened and 24 were included.

RESULTS

A meta-summery of the results from the included studies were conducted. The parents lived in fear, after their child had their first reaction and had become allergic, a life threatening experience. They tried to live an ordinary family life and parents had to learn how to be one-step ahead and understand early signs. The family's social life was also influenced. Parents asked for support and information from health professionals and more knowledge and skills increased parents' manageability.

CONCLUSION

Parents need support and a seamless encounter with health professionals, with multidisciplinary collaboration and knowledge sharing to develop the parents' self-efficacy.

IMPLICATIONS

Health professionals must provide information and support parents on their path through the health-care system in having a child with a food allergy.

摘要

问题

食物过敏是目前发展最快的公共健康问题之一,尚无治愈方法,影响着全球约 8%的儿童人口。作为过敏儿童的父母,可能会产生担忧,并影响家庭的日常生活。本研究旨在综合描述当家中有儿童患有食物过敏时,父母的生活体验。

入选标准

使用主题词和文本词在 CINAHL(Ebsco)、Swemed+、Medline(OVID)和 Scopus 中进行了系统搜索,搜索时间截至 2017 年 10 月。该搜索仅限于有儿童和青少年的父母,时间范围为 2006 年至 2017 年 10 月。

样本

筛选出 140 篇文章,其中 24 篇被纳入。

结果

对纳入研究的结果进行了元综合。在孩子出现第一次反应并过敏后,父母生活在恐惧中,这是一次危及生命的经历。他们试图过正常的家庭生活,父母必须学会未雨绸缪,了解早期迹象。家庭的社交生活也受到影响。父母向卫生专业人员寻求支持和信息,更多的知识和技能提高了父母的管理能力。

结论

父母需要支持和与卫生专业人员无缝对接,多学科合作和知识共享可以提高父母的自我效能感。

意义

卫生专业人员必须在父母为患有食物过敏的孩子寻求医疗保健的过程中提供信息和支持。

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