定义和实现基因组医学中的健康公平性。
Defining and Achieving Health Equity in Genomic Medicine.
机构信息
National Human Genome Research Institute, National Institutes of Health, Bethesda, MD.
出版信息
Ethn Dis. 2019 Feb 21;29(Suppl 1):173-178. doi: 10.18865/ed.29.S1.173. eCollection 2019.
Abstract
The potential of genomics to improve health comes with the peril that the benefits will not be equitably available to all populations. Existing health disparities can be exacerbated if the implementation of genomic medicine does not intentionally focus on health equity. Defining what health equity means in the context of genomics and outlining how it can be achieved is important for the future of the field. Strategies to improve health equity include addressing underrepresentation of diverse populations in genomic research, investigating how genomic services can be deployed in diverse health care settings and underserved communities, increasing workforce diversity, supporting infrastructure development outside traditional research centers, and engaging communities and health care providers. By employing these strategies, the genomic research community can advance health equity in genomic medicine.
摘要
基因组学提高健康水平的潜力伴随着一个危险，即并非所有人群都能公平地获得这些益处。如果实施基因组医学时不刻意关注健康公平，现有的健康差距可能会加剧。在基因组学背景下定义健康公平的含义并概述如何实现它，对该领域的未来至关重要。改善健康公平的策略包括解决基因组研究中不同人群代表性不足的问题，研究如何在不同的医疗保健环境和服务不足的社区中部署基因组服务，增加劳动力多样性，支持传统研究中心以外的基础设施发展，以及让社区和医疗保健提供者参与进来。通过采用这些策略，基因组研究界可以在基因组医学中促进健康公平。
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