Haddad Raymond N, Mourani Chebl C
Department of Pediatrics, Hotel-Dieu de France University Medical Center, Saint Joseph University, Beirut, Lebanon.
Division of Pediatric Nephrology, Department of Pediatrics, Hotel-Dieu de France University Medical Center, Saint Joseph University, Beirut, Lebanon.
Front Pediatr. 2019 Apr 3;7:45. doi: 10.3389/fped.2019.00045. eCollection 2019.
To evaluate the use and benefits of social networking sites (SNS) and mobile applications (MA) in young patients with kidney disease (KD). Pediatric KD is prevalent. The Internet is increasingly being used to communicate rapid healthcare information to children about acute and chronic diseases with greater medical care satisfaction. There is a lack of data on social media (SM) utility in pediatric KD. A descriptive, observational, and cross-sectional study was conducted on a national level. Data were collected from 4 different centers through a reviewed questionnaire. 83.9% of the 428 participants were Lebanese. The average age was 11.4 years (±7.1). 69.9% had chronic KD out of which 17.4% had undergone a kidney transplant while 9% were on dialysis. 69.6% of the participants affirmed the need of SM for the health of the sick child while only 9.8% are participating in a scientific forum and 4.7% used SM to find a potential organ donor. Some study variables were statistically associated with the participants' age, nationality, and stage of KD. SM is important for the support and management of pediatric KD. We believe that SNS and MA will play a leading role in the lives of our patients in the upcoming future and will push the physician to be an active participant in the evolution of communication networks. To identify the efficacy of SM in enhancing communication between patients and health professionals, further stratified studies are needed.
评估社交网站(SNS)和移动应用程序(MA)在年轻肾病(KD)患者中的使用情况及益处。儿童KD很常见。互联网越来越多地用于向儿童传播有关急性和慢性疾病的快速医疗信息,从而提高医疗护理满意度。目前缺乏关于社交媒体(SM)在儿童KD中效用的数据。在全国范围内开展了一项描述性、观察性横断面研究。通过一份经过审核的问卷从4个不同中心收集数据。428名参与者中83.9%为黎巴嫩人。平均年龄为11.4岁(±7.1)。69.9%患有慢性KD,其中17.4%接受了肾移植,9%正在接受透析。69.6%的参与者确认患病儿童的健康需要SM,而只有9.8%参与科学论坛,4.7%利用SM寻找潜在器官捐献者。一些研究变量与参与者的年龄、国籍和KD阶段存在统计学关联。SM对儿童KD的支持和管理很重要。我们认为SNS和MA在未来将在我们患者的生活中发挥主导作用,并将促使医生积极参与通信网络的发展。为确定SM在加强患者与卫生专业人员之间沟通方面的功效,需要进一步开展分层研究。