Gage-Bouchard Elizabeth A, LaValley Susan, Devonish Julia A
1 Department of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, NY, USA.
Cancer Control. 2019 Jan-Dec;26(1):1073274819841609. doi: 10.1177/1073274819841609.
With the rise in the use of the Internet for health-related purposes, social networking sites (SNSs) have become a prominent platform for cancer communication and information exchange. Studies of cancer communication on SNS have mostly focused on understanding the quantity, content, quality, and user engagement (eg, likes and comments) with cancer-related information on SNS. There is less of an understanding of when and why people coping with cancer turn to SNS for cancer-related information, and how users appraise the credibility of cancer-related information obtained on SNS. In this study, we use data from in-depth qualitative interviews with 40 primary caregivers of pediatric patients with cancer to examine how cancer caregivers engage in information appraisal and credibility assessment of cancer-related information obtained on SNS. Findings show that cancer caregivers turned to SNS for cancer-related information because information on SNS was immediate, targeted in response to specific caregiver questions and concerns, and tailored to the specific information needs of cancer caregivers. Cancer caregivers evaluated the credibility of cancer-related information obtained on SNS through assessment of the SNS user who posted the information, frequency the same information was shared, and external corroboration. Findings have important implications for cancer communication and information interventions and point to elements of SNS cancer communication that can be integrated into health professional-facilitated communication and cancer information strategies.
随着互联网在健康相关领域的使用增加,社交网站(SNS)已成为癌症交流和信息交换的重要平台。关于SNS上癌症交流的研究大多集中在了解SNS上癌症相关信息的数量、内容、质量以及用户参与度(如点赞和评论)。对于正在应对癌症的人们何时以及为何转向SNS获取癌症相关信息,以及用户如何评估在SNS上获得的癌症相关信息的可信度,了解较少。在本研究中,我们使用对40名癌症患儿主要照料者进行深入定性访谈的数据,来考察癌症照料者如何对在SNS上获得的癌症相关信息进行信息评估和可信度评估。研究结果表明,癌症照料者转向SNS获取癌症相关信息,是因为SNS上的信息即时、针对照料者的特定问题和担忧,并且是根据癌症照料者的特定信息需求量身定制的。癌症照料者通过评估发布信息的SNS用户、相同信息的分享频率以及外部佐证来评估在SNS上获得的癌症相关信息的可信度。研究结果对癌症交流和信息干预具有重要意义,并指出了SNS癌症交流中可整合到卫生专业人员促进的交流和癌症信息策略中的要素。