Meherali Salima, Campbell Alyson, Hartling Lisa, Scott Shannon
Faculty of Nursing, Edmonton Clinic Health Academy, University of Alberta, Edmonton, Alberta, Canada.
Alberta Research Center for Health Evidence (ARCHE), Department of Pediatrics, University of Alberta, Alberta, Canada.
J Patient Exp. 2019 Mar;6(1):53-61. doi: 10.1177/2374373518771362. Epub 2018 Apr 24.
Acute otitis media (AOM) is the most common pediatric bacterial ear infection, affecting up to 75% of children younger than 5 years. Despite the high incidence of AOM in children, the condition presents a number of challenges to parents. The objectives of this study were to describe parents' experiences of taking care of a child with AOM and to identify their information needs to manage their child with AOM.
A qualitative, descriptive design was used to gain insight into information needs of parents' of children with AOM. Participants were recruited from a specialized pediatric emergency department in a major Canadian urban center (Edmonton, Alberta). Individual semi structured interviews were conducted with 16 parents.
Seven major themes were identified and described: (1) frequency of AOM, (2) symptoms of AOM experienced by children and parents, (3) AOM symptom management strategies used by parents, (4) parent's beliefs about AOM, (5) parent's satisfaction with treatment prescribed by physicians, (6) the effect of AOM on family's quality of life, and (7) parent's information needs about AOM. Findings indicate that AOM has considerable negative outcomes for both children and families and that parents would benefit from having more evidence-based resources.
This study provides important information around parents' experiences and information needs for pediatric AOM. Identifying parents' information needs and developing innovative and communicatively responsive educational approaches for parents are warranted that reflect patient-centered nursing care.
急性中耳炎(AOM)是儿童最常见的细菌性耳部感染,5岁以下儿童的发病率高达75%。尽管儿童AOM的发病率很高,但这种疾病给家长带来了诸多挑战。本研究的目的是描述家长照顾患有AOM儿童的经历,并确定他们管理患有AOM儿童的信息需求。
采用定性描述性设计,以深入了解患有AOM儿童家长的信息需求。参与者从加拿大一个主要城市中心(艾伯塔省埃德蒙顿市)的一家专门的儿科急诊科招募。对16名家长进行了个人半结构式访谈。
确定并描述了七个主要主题:(1)AOM的发病频率,(2)儿童和家长经历的AOM症状,(3)家长使用的AOM症状管理策略,(4)家长对AOM的看法,(5)家长对医生开的治疗方法的满意度,(6)AOM对家庭生活质量的影响,以及(7)家长对AOM的信息需求。研究结果表明,AOM对儿童和家庭都有相当大的负面影响,家长将受益于获得更多基于证据的资源。
本研究提供了有关家长照顾患有儿科AOM儿童的经历和信息需求的重要信息。确定家长的信息需求,并为家长开发创新且具有沟通响应性的教育方法是必要的,这体现了以患者为中心的护理。