Division of Emergency Medicine, Children's Hospital of Eastern Ontario, Ottawa, Canada; Department of Pediatrics, University of Ottawa, Ottawa, Canada; Research Institute, Children's Hospital of Eastern Ontario, Ottawa, Canada.
Department of Pediatrics, University of Ottawa, Ottawa, Canada.
Patient Educ Couns. 2020 Jan;103(1):227-233. doi: 10.1016/j.pec.2019.07.028. Epub 2019 Jul 29.
We designed a written Canadian Anaphylaxis Action Plan for Kids (Kids' CAP) which incorporates validated pictograms with written instructions. Using a patient-centered approach, we aimed to validate the Kids' CAP and assess its impact on anaphylaxis recognition and treatment, and to determine its' perceived usefulness.
Children and their parents were involved in appraising the design and written contents of the Kids' CAP.
The design process consisted of a development phase and clinical validation phase. First, we assessed the readability and understandability of the Kids' CAP using validated instruments. Then, patients (12-17 years of age) and parents of patients (<12 years of age) were given the Kids' CAP during the first consultation with allergy specialists or an Emergency Department visit for anaphylaxis. Subsequently, we conducted a phone interview 2-3 weeks later to assess their comprehension of anaphylaxis management. We also used the Consumer Information Rating Form to measure the participants' perception of the design quality and usefulness of the Kids' CAP.
Of the 230 participants enrolled, 205 (89%) completed the follow-up interview. The written contents of the Kid's CAP were modified to match grade 7 readability level. The total mean score of the Consumer Information Rating Form for comprehensibility was 23.1 (SD 2.4), and 25.1 (SD 2.3) for design quality. The mean comprehension score was 11.3 (SD 1.8) (reference range 0-12), with no significant difference between participants with and without previous experience with anaphylaxis, or high vs. low literacy level.
Engaging children and parents in the design and contents of written anaphylaxis action plan is an innovative approach to produce a useful document for the end-users.
The Kids' CAP is a valid tool that can be used in emergency departments and allergy clinics to improve patient's comprehension of anaphylaxis manifestations and treatment.
我们设计了一份书面的加拿大儿童过敏行动计划（Kids' CAP），其中包含经过验证的象形图和书面说明。我们采用以患者为中心的方法，旨在验证 Kids' CAP，并评估其对过敏反应识别和治疗的影响，并确定其被认为的有用性。
儿童及其父母参与了评估 Kids' CAP 的设计和书面内容。
设计过程包括开发阶段和临床验证阶段。首先，我们使用经过验证的工具评估了 Kids' CAP 的可读性和可理解性。然后，在过敏专科医生的首次就诊或因过敏反应就诊的急诊室，将 Kids' CAP 分发给 12-17 岁的患者和 <12 岁的患者的父母。随后，我们在 2-3 周后进行电话访谈，以评估他们对过敏反应管理的理解。我们还使用消费者信息评分表来衡量参与者对 Kids' CAP 的设计质量和有用性的看法。
在纳入的 230 名参与者中，有 205 名（89%）完成了随访访谈。Kids' CAP 的书面内容已修改为符合 7 年级阅读水平。消费者信息评分表的总体理解评分平均值为 23.1（SD 2.4），设计质量评分为 25.1（SD 2.3）。平均理解得分为 11.3（SD 1.8）（参考范围为 0-12），有过敏反应既往史和无过敏反应既往史的参与者之间，以及高或低文化程度的参与者之间，理解评分无显著差异。
让儿童和父母参与书面过敏反应行动计划的设计和内容是一种创新方法，可以为最终用户生成有用的文档。
Kids' CAP 是一种有效的工具，可在急诊室和过敏诊所中使用，以提高患者对过敏反应表现和治疗的理解。
