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提高原住民社区痴呆症健康素养的方法。

An Approach to Improve Dementia Health Literacy in Indigenous Communities.

作者信息

Webkamigad Sharlene, Warry Wayne, Blind Melissa, Jacklin Kristen

机构信息

School of Rural and Northern Health, Laurentian University, Sudbury, ON, Canada.

University of Minnesota, Medical School Duluth, 624 E 1st Street, Unit 201, Duluth, MN, 55805, USA.

出版信息

J Cross Cult Gerontol. 2020 Mar;35(1):69-83. doi: 10.1007/s10823-019-09388-2.

Abstract

This project aims to improve health literacy in Indigenous communities through the development of evidence-based culturally relevant health promotion materials on dementia that bridge the gap between Indigenous and Western perspectives of the illness. The research team worked in partnership with Health Canada's First Nations and Inuit Home and Community Care Program (FNIHCC) and consulted with Indigenous elders to utilize a two-eyed seeing framework that draws upon Indigenous knowledge and Western biomedicine. A consolidated review of materials and research involving Indigenous perspectives of Alzheimer's and age-related dementias led to the development of two culturally appropriate fact sheets. Two Indigenous-specific fact sheets were developed "What is Dementia? Indigenous Perspectives and Cultural Understandings" and "Signs and Symptoms of Dementia: An Indigenous Guide." The fact sheets prioritize Indigenous knowledge and pay particular attention to Indigenous languages, diverse Indigenous cultures, and literacy levels. The content uses phrasing and words from Indigenous people involved in the research to share information. Biomedical concepts and words were included when necessary but language or presentation of these aspects were often modified to reflect Indigenous conceptualizations. This project provides a foundation for evidence-based knowledge translation in relation to cultural safety in dementia care. Specifically, the researchers outline how health care providers can develop culturally appropriate health promotion material, thus increasing Indigenous cultural understandings of dementia and health literacy.

摘要

该项目旨在通过开发基于证据的、与文化相关的痴呆症健康促进材料,弥合原住民和西方对该疾病看法之间的差距,从而提高原住民社区的健康素养。研究团队与加拿大卫生部的原住民和因纽特人家庭及社区护理项目(FNIHCC)合作,并咨询了原住民长者,以运用一种融合了原住民知识和西方生物医学的“双眼看”框架。对涉及原住民对阿尔茨海默病和与年龄相关痴呆症看法的材料及研究进行综合审查后,开发了两份符合文化背景的情况说明书。开发了两份针对原住民的情况说明书,即《什么是痴呆症?原住民视角与文化理解》和《痴呆症的体征和症状:原住民指南》。这些情况说明书优先考虑原住民知识,并特别关注原住民语言、多样的原住民文化和识字水平。内容使用了参与研究的原住民的措辞和词汇来分享信息。必要时纳入了生物医学概念和词汇,但这些方面的语言或表述通常会进行修改,以反映原住民的概念。该项目为痴呆症护理中与文化安全相关的循证知识转化奠定了基础。具体而言,研究人员概述了医疗保健提供者如何开发符合文化背景的健康促进材料,从而增进原住民对痴呆症的文化理解和健康素养。

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