Author Affiliations: Department of Public Health Sciences, College of Medicine, The Pennsylvania State University, Hershey (Drs Bluethmann, Schmitz, and Winkels and Mss Oostra, Burse, and Schleicher); and Center for Health Care and Policy Research (Ms Wolf) and Department of Kinesiology (Dr Mama), The Pennsylvania State University, University Park.
Cancer Nurs. 2021;44(2):154-162. doi: 10.1097/NCC.0000000000000788.
Metastatic breast cancer patients are now living longer but cope with potential symptoms of metastatic disease and prolonged cancer treatment. Nutrition can play a vital role in managing these sequelae, and eHealth tools are emerging as promising delivery options for nutrition interventions.
To qualitatively assess nutritional problems and concerns of women with metastatic breast cancer and to explore how to address these problems within an existing eHealth platform.
Semistructured interviews were conducted with 21 women with metastatic breast cancer participating in an ongoing eHealth study. Interviews were audiotaped, transcribed verbatim, and analyzed using a team-based content analysis approach.
Most respondents reported currently or previously experiencing nutritional problems due to adverse effects of cancer treatment or the disease itself; these were rarely addressed during routine clinical care. Five major themes emerged: (1) knowledge about nutrition, (2) nutrition information-seeking, (3) social aspects of nutrition, (4) nutrition interest, and (5) how to address nutrition with an eHealth platform. The respondents reported diverse experiences and perspectives regarding nutrition and diet in the context of metastatic breast cancer within each theme.
Findings indicate the importance of providing women with metastatic breast cancer with information about nutrition that is tailored to their specific disease, as these patients report both nutritional problems and uncertainty regarding nutritional strategies.
These findings are a first step toward designing supportive care interventions that could fill the gap related to nutritional concerns not addressed during routine clinical care.
转移性乳腺癌患者的存活时间现在更长，但仍会面临转移性疾病和长期癌症治疗带来的潜在症状。营养可以在管理这些后遗症方面发挥重要作用，电子健康工具作为营养干预的一种有前途的传递方式正在出现。
定性评估转移性乳腺癌女性的营养问题和关注点，并探讨如何在现有的电子健康平台中解决这些问题。
对 21 名参与正在进行的电子健康研究的转移性乳腺癌女性进行半结构化访谈。访谈进行录音，逐字转录，并使用基于团队的内容分析方法进行分析。
大多数受访者报告目前或以前因癌症治疗或疾病本身的副作用而出现营养问题；这些问题在常规临床护理中很少得到解决。出现了五个主要主题：（1）营养知识，（2）营养信息搜索，（3）营养的社会方面，（4）营养兴趣，以及（5）如何利用电子健康平台解决营养问题。受访者在每个主题中报告了在转移性乳腺癌背景下对营养和饮食的不同经历和观点。
研究结果表明，为转移性乳腺癌女性提供针对其特定疾病的营养信息非常重要，因为这些患者报告存在营养问题和对营养策略的不确定性。
这些发现是朝着设计支持性护理干预措施迈出的第一步，可以解决常规临床护理中未解决的营养问题。
