McDermott Orii, Sobers Thea, Mukadam Naaheed, Lee Abigail Rebecca, Orrell Martin
School of Medicine, University of Nottingham, Nottingham, UK.
Dementia UK, London, UK.
Int J Geriatr Psychiatry. 2025 Mar;40(3):e70047. doi: 10.1002/gps.70047.
This review aims to synthesise the evidence regarding the use and provision of dementia services and support for people with dementia and/or supporters from South Asian, African or Caribbean backgrounds living in the UK.
A narrative synthesis systematic review of the original research articles published up to April 2024 was conducted. A lay summary of the initial review findings was evaluated by experts-by-experience (n = 15) for scrutiny and to enable further discussions, to produce key recommendations for further developing dementia services.
A total of 18 studies (16 qualitative and 2 mixed methods studies) met the full inclusion criteria and were included in the review. The review findings and experts-by-experience consultations highlighted that: (1) dementia is not openly discussed or disclosed within many diverse ethnic communities. This can lead to family carers and people with dementia feeling isolated and unsupported. (2) Mainstream dementia support services and hospitals often do not meet diverse communities' cultural and religious needs, and (3) home-based care supported by external care agencies can be helpful but ensuring consistency of care staff in their culturally appropriate care can be extremely difficult to ensure.
Encouraging South Asian, African and Caribbean communities to increase their dementia knowledge is important. However, mainstream dementia support services also need to incorporate their cultural and religious essentials into care packages to encourage their help seeking behaviours and tackle dementia stigma. Collaborative service developments between the diverse communities, Health and Social Care providers and policy makers are essential to ensure equitable and culturally appropriate dementia care for diverse community members in the future.
本综述旨在综合有关为居住在英国的南亚、非洲或加勒比背景的痴呆症患者和/或其支持者提供痴呆症服务及支持的证据。
对截至2024年4月发表的原始研究文章进行叙述性综合系统综述。由经验丰富的专家（n = 15）对初步综述结果的通俗总结进行评估，以进行审查并促进进一步讨论，从而为进一步发展痴呆症服务提出关键建议。
共有18项研究（16项定性研究和2项混合方法研究）符合全部纳入标准并被纳入综述。综述结果以及与经验丰富的专家的磋商突出表明：（1）在许多不同的族裔社区中，痴呆症并未得到公开讨论或披露。这可能导致家庭照顾者和痴呆症患者感到孤立无援。（2）主流的痴呆症支持服务和医院往往无法满足不同社区的文化和宗教需求，并且（3）由外部护理机构提供的居家护理可能会有所帮助，但要确保护理人员在文化上适当的护理方面保持一致性却极其困难。
鼓励南亚、非洲和加勒比社区增加对痴呆症的了解非常重要。然而，主流的痴呆症支持服务也需要将其文化和宗教要素纳入护理方案中，以鼓励他们寻求帮助的行为并消除对痴呆症的污名化。不同社区、卫生和社会护理提供者以及政策制定者之间的合作服务发展对于确保未来为不同社区成员提供公平且符合文化需求的痴呆症护理至关重要。
