Unidad de Psico-Oncología, Institut Català d'Oncologia, Av. Gran Via de l'Hospitalet, 199-203, 08908, L'Hospitalet de Llobregat, Barcelona, Spain.
Universitat de Barcelona, Barcelona, Spain.
Support Care Cancer. 2020 Oct;28(10):4989-4996. doi: 10.1007/s00520-020-05335-x. Epub 2020 Feb 7.
To study the impact of the spontaneous use of Internet on breast cancer patients and on their relationship with health professionals.
A mixed methodology was used. Two questionnaires were designed through three focus groups, and then administered to 186 patients and 59 professionals in order to assess: (1) patients' use of Internet for health-related information and (2) the impact of this information on patients' psychological outcomes and on their relationship with professionals.
Patients spent more time looking for illness-related information after diagnosis, using interactive communities more than static information websites. Patients and professionals disagreed about the use of Internet in terms of the knowledge it provides, and its psychological impact. The main barrier reported by patients regarding the sharing of online information with their professionals was the belief that it would damage their relationship.
Both professionals and patients have a protectionist conception of the therapeutic relationship. This attitude tends to dismiss the positive impact that the use of Internet and the new communication tools may have in cancer patients. New resources should provide an "Internet Prescription" and modes of interaction to facilitate a more open digital communication.
研究互联网的自发使用对乳腺癌患者及其与卫生专业人员关系的影响。
采用混合方法。通过三个焦点小组设计了两份问卷，然后对 186 名患者和 59 名专业人员进行了调查，以评估：（1）患者对健康相关信息的互联网使用情况；（2）该信息对患者心理结果及其与专业人员关系的影响。
患者在诊断后花费更多时间寻找与疾病相关的信息，使用互动社区多于静态信息网站。患者和专业人员对互联网提供的知识及其心理影响存在分歧。患者在与专业人员共享在线信息方面报告的主要障碍是他们认为这会破坏他们的关系。
专业人员和患者对治疗关系都有保护主义的概念。这种态度往往忽视了互联网和新的通信工具的使用可能对癌症患者产生的积极影响。新资源应提供“互联网处方”和交互模式，以促进更开放的数字通信。
