Haines Kimberley J, Holdsworth Clare, Cranwell Kathryn, Skinner Elizabeth H, Holton Sara, MacLeod-Smith Belinda, Bates Samantha, Iwashyna Theodore J, French Craig, Booth Sarah, Carmody Jacki, Henningham Lucy, Searle Grey, Shackell Melina, Maher Lynne
Department of Physiotherapy, Western Health, Melbourne, VIC, Australia.
Australian and New Zealand Intensive Care Research Centre, School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, Australia.
Crit Care Explor. 2019 Mar 22;1(3):e0006. doi: 10.1097/CCE.0000000000000006. eCollection 2019 Mar.
To use experience-based co-design to identify the key design requirements of a peer support model for critical care survivors; understand the use of the experience-based co-design method from clinician, patients, and family perspectives.
Using experience-based co-design, qualitative data about participants' preferences for a peer support model were generated via workshops. Participants' perspectives of experience-based co-design were evaluated with focus groups.
University-affiliated hospital in Melbourne, Australia.
Snowball sampling was used to recruit clinicians from across the care spectrum (ICU-community); critical care survivors and nominated family members were recruited using convenience sampling.
Consensus on a peer support model was reached through the experience-based co-design process, with the following key themes: 1) socialization and group cohesion; 2) management of potential risks; and 3) individualized needs of patients and families. Evaluation of participants' perspectives of the experience-based co-design method identified five key themes: 1) participation as a positive experience; 2) emotional engagement in the process; 3) learning from patients and family members; 4) feeling heard; and 5) practical challenges of experience-based co-design and readiness to participate.
Experience-based co-design was a feasible approach to developing a peer support model for use with critical care survivors and was well received by participants. Future testing of the co-designed peer support model in a pilot randomized controlled trial will enhance understanding of peer support in critical care and the use of experience-based co-design as a design methodology.
运用基于经验的协同设计来确定重症监护幸存者同伴支持模式的关键设计要求；从临床医生、患者及家属的角度理解基于经验的协同设计方法的应用。
采用基于经验的协同设计，通过研讨会生成关于参与者对同伴支持模式偏好的定性数据。通过焦点小组评估参与者对基于经验的协同设计的看法。
澳大利亚墨尔本的一家大学附属医院。
采用滚雪球抽样法从整个护理领域（重症监护病房 - 社区）招募临床医生；采用便利抽样法招募重症监护幸存者及其指定的家庭成员。
通过基于经验的协同设计过程就同伴支持模式达成了共识，主要有以下关键主题：1）社交与团队凝聚力；2）潜在风险的管理；3）患者及家属的个性化需求。对参与者对基于经验的协同设计方法看法的评估确定了五个关键主题：1）参与是一种积极体验；2）过程中的情感投入；3）向患者及家属学习；4）感到被倾听；5）基于经验的协同设计的实际挑战及参与意愿。
基于经验的协同设计是开发用于重症监护幸存者的同伴支持模式的一种可行方法，且受到参与者的欢迎。在一项试点随机对照试验中对共同设计的同伴支持模式进行进一步测试，将增进对重症监护中同伴支持以及将基于经验的协同设计作为一种设计方法的理解。
