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姑息治疗研究中的关系伦理:纳入以患者为中心的方法。

Relational ethics in palliative care research: including a person-centred approach.

作者信息

Haraldsdottir Erna, Lloyd Anna, Dewing Jan

机构信息

St Columba's Hospice, Edinburgh, UK.

School of Health Sciences, Queen Margaret University, Edinburgh, UK.

出版信息

Palliat Care Soc Pract. 2019 Dec 19;13:2632352419885384. doi: 10.1177/2632352419885384. eCollection 2019.

Abstract

The traditional approach to research ethics is to ensure that all ethical issues are adhered to through the scrutiny of research proposals by research ethics committees, themselves sitting within national research governance frameworks. The current approach implies that all potential ethical issues can be considered and mitigated prior to the research. This article is a perspective piece whereby we consider how this approach, on its own, is not enough to ensure ethical practice. We draw attention to the limitations of current ethical procedures in the inherent detachment between the researcher and research participants. We argue that applying a person-centred approach to research ethics allows for contextual and situational factors and places the relationship between research participants and researcher as central.

摘要

传统的研究伦理方法是,通过研究伦理委员会对研究提案进行审查来确保所有伦理问题都得到遵守,而这些委员会本身处于国家研究治理框架之内。当前的方法意味着所有潜在的伦理问题都可以在研究之前得到考虑和缓解。本文是一篇观点文章,我们思考了这种方法本身如何不足以确保符合伦理的实践。我们提请注意当前伦理程序在研究者与研究参与者之间固有的脱节方面的局限性。我们认为,将以人为本的方法应用于研究伦理考虑到了背景和情境因素,并将研究参与者与研究者之间的关系置于核心地位。

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