Elson S. Floyd College of Medicine, Washington State University, Vancouver, WA, USA.
HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
J Genet Couns. 2020 Jun;29(3):471-478. doi: 10.1002/jgc4.1258. Epub 2020 Mar 27.
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%-27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.
由于基因组研究参与者缺乏多样性，导致遗传检测的受益存在差异。为了解决这个问题，阿拉巴马基因组健康倡议采用了社区参与策略，在他们居住的地方招募不同的人群。在本文中，我们描述了我们的参与技术和招募策略，这些策略显著提高了非裔美国参与者的代表性。虽然非裔美国人的参与率尚未达到该社区在阿拉巴马州总人口中的比例（26%-27%），但我们已经实现了非裔美国人总体参与率超过 20%的目标。我们相信，这证明了在多样化人群居住的地方进行参与和招募是有价值的。
