Reis Bruno Borges, Lins Liliane, Spínola Laís Gomes, Carvalho Fernando Martins
School of Medicine of Bahia, Graduate Program in Health, Environment and Work, Universidade Federal da Bahia - Salvador (BA), Brazil.
Rev Bras Med Trab. 2018 Sep 1;16(3):318-326. doi: 10.5327/Z1679443520180278. eCollection 2018.
The face plays a central role in interpersonal relationships. Individuals with congenital or acquired facial deformities might experience difficulties with interpersonal relationships. Treatment should seek to improve their quality of life and work ability.
To analyze the health-related quality of life and work ability of individuals with facial deformities.
Study with mixed, quantitative and qualitative methods. We conducted semi-structured interviews on health-related quality of life and its implications for work with 16 individuals with facial deformities, eight cases of congenital and eight of acquired deformities, cared at specialized services in Salvador, Bahia, Brazil. The Work Ability Index (WAI) and 36-Item Short-Form Health Survey were administered.
Thematic analysis led us to detect two categories of themes associated with facial deformities: interpersonal relationships and work ability; and quality of life and access to treatment. The participants with acquired facial deformities exhibited lower educational level and income, and lower quality of life and WAI scores compared to the ones with congenital deformities. All the participants with congenital deformities had received some form of rehabilitation and their social relationships were less impaired.
Individuals with acquired facial deformities exhibited poorer work ability and quality of life compared to the ones with congenital deformities. Early rehabilitation of congenital deformities seems to considerably improve work ability and health-related quality of life.
面部在人际关系中起着核心作用。患有先天性或后天性面部畸形的个体在人际关系方面可能会遇到困难。治疗应致力于提高他们的生活质量和工作能力。
分析面部畸形个体的健康相关生活质量和工作能力。
采用混合的定量和定性研究方法。我们对16名面部畸形个体进行了关于健康相关生活质量及其对工作影响的半结构化访谈,其中8例为先天性畸形,8例为后天性畸形,他们在巴西巴伊亚州萨尔瓦多的专门服务机构接受护理。使用了工作能力指数(WAI)和36项简短健康调查。
主题分析使我们发现了与面部畸形相关的两类主题:人际关系和工作能力;生活质量和获得治疗的机会。与先天性畸形个体相比,后天性面部畸形个体的教育水平和收入较低,生活质量和WAI得分也较低。所有先天性畸形个体都接受了某种形式的康复治疗,他们的社会关系受损程度较小。
与先天性畸形个体相比,后天性面部畸形个体的工作能力和生活质量较差。先天性畸形的早期康复似乎能显著提高工作能力和健康相关生活质量。