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评估土耳其面部假体患者的健康相关生活质量。

Assessment of health-related quality of life in Turkish patients with facial prostheses.

机构信息

Department of Prosthodontics, GATA Haydarpaşa Training Hospital Dental Service, Usküdar, Istanbul, Turkey.

出版信息

Health Qual Life Outcomes. 2013 Jan 26;11:11. doi: 10.1186/1477-7525-11-11.

DOI:10.1186/1477-7525-11-11
PMID:23351906
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3564838/
Abstract

BACKGROUND

Facial prostheses are intended to provide a non-operative rehabilitation for patients with acquired facial defects. By improving aesthetics and quality of life (QOL), this treatment involves reintegration of the patient into family and social life. The aim of this study was to evaluate the perception of QOL in adult patients with facial prostheses and to compare this perception with that of a control group.

METHODS

The study participants consisted of 72 patients, who were divided into three equal-sized groups according to the type of prosthesis (OP- orbital prosthesis, AP- auricular prosthesis, NP - nasal prosthesis) and 24 healthy control participants without any congenital or acquired deformity of face or body. Clinical and socio-demographic data were gathered from each person's medical chart. Participants completed the Turkish version of the World Health Organization Quality of Life Instrument, Short Form (WHOQOL-BREF). Descriptive statistics, independent sample t-tests, Pearson's chi-square test, ANOVA, ANCOVA, and Pearson correlation were used to analyse the data.

RESULTS

Compared with the control participants, patients with NP scored lower on the all domains of QOL and all three patient groups had lower scores on overall QOL and its domains of physical and environmental health. Patients with OP reported significantly lower physical health scores than those with AP, while patients with NP reported significantly lower overall QOL and psychological health scores than those with AP. Female patients had lower environmental domain scores than did male patients. The patient's age and income correlated with social relationships QOL, while the patient's income and the age of facial prosthesis were correlated with environmental QOL.

CONCLUSION

Patients with facial prostheses had lower scores in overall QOL, physical and environmental health domains than the control participants. Socio-demographic and clinical characteristics such as age, gender, income, localization of the defect, and age of facial prosthesis were associated with patients' QOL. These findings may provide valuable information about the specific health needs of these patients that may affect their well-being. Further studies are needed to confirm these results. Use of the WHOQOL-BREF may provide valuable information for determining patients' needs and priorities as well as for planning and developing comprehensive prosthetic rehabilitation programs.

摘要

背景

面部假体旨在为后天面部缺陷的患者提供非手术康复治疗。通过改善美观和生活质量(QOL),这种治疗方式可以使患者重新融入家庭和社会生活。本研究旨在评估成年面部假体患者对 QOL 的感知,并将其与对照组进行比较。

方法

研究参与者包括 72 名患者,根据假体类型(OP-眼眶假体、AP-耳廓假体、NP-鼻假体)分为三组,每组 24 名,以及 24 名无先天性或后天性面部或身体畸形的健康对照组。从每个人的病历中收集临床和社会人口统计学数据。参与者完成了世界卫生组织生活质量量表简表(WHOQOL-BREF)的土耳其语版本。使用描述性统计、独立样本 t 检验、Pearson 卡方检验、方差分析、协方差分析和 Pearson 相关分析来分析数据。

结果

与对照组相比,NP 组患者在所有 QOL 领域和所有三组患者的总体 QOL 及其生理和环境健康领域的得分均较低。OP 组患者的生理健康评分显著低于 AP 组,而 NP 组患者的总体 QOL 和心理健康评分显著低于 AP 组。女性患者的环境领域得分低于男性患者。患者的年龄和收入与社会关系 QOL 相关,而患者的收入和面部假体的年龄与环境 QOL 相关。

结论

与对照组相比,面部假体患者的总体 QOL、生理和环境健康领域的得分较低。年龄、性别、收入、缺陷部位和面部假体年龄等社会人口统计学和临床特征与患者的 QOL 相关。这些发现可能为了解这些患者的特定健康需求提供有价值的信息,这些需求可能会影响他们的幸福感。需要进一步的研究来证实这些结果。使用 WHOQOL-BREF 可以提供有价值的信息,用于确定患者的需求和优先事项,以及规划和制定全面的修复体康复计划。

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