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脊髓损伤和后天性脑损伤患者的家庭成员如何理解他们的经历:一项关于意义建构过程的定性研究

How do family members of individuals with spinal cord and acquired brain injuries make sense of their experiences: A qualitative study of meaning making processes.

作者信息

Geard Anne, Kirkevold Marit, Løvstad Marianne, Schanke Anne-Kristine

机构信息

University of Oslo, Norway.

Sunnaas Rehabilitation Hospital, Norway.

出版信息

Health Psychol Open. 2020 Mar 30;7(1):2055102920913477. doi: 10.1177/2055102920913477. eCollection 2020 Jan-Jun.

Abstract

This study explores the processes that promote coping with abruptive life changes, often experienced as life before and after injury. The consept of meaning making, was used as theoretical framework for analysisthr. Family members of individuals with spinal cord and acquired brain injury participated in two focus groups three to twenty years post-injury. Data was analysed using thematic analyses. Two main themes were identified: drawing upon different coping strategies and balancing family needs against personal autonomy. Making sense of an altered situation was by keeping a positive outlook, making comparisons to worst cases, engagement in activities and making room for own needs. Thus, the study illistrates that life can continue in a good manner after adversities, but requires flexibility and adjustments.

摘要

本研究探讨了促进应对突然生活变化的过程,这种变化常在受伤前后的生活中经历。意义建构的概念被用作分析的理论框架。脊髓损伤和后天性脑损伤患者的家庭成员在受伤后三至二十年参加了两个焦点小组。数据采用主题分析法进行分析。确定了两个主要主题:采用不同的应对策略以及在家庭需求与个人自主权之间取得平衡。通过保持积极的态度、与最坏情况进行比较、参与活动以及为自身需求留出空间来理解变化的情况。因此,该研究表明,逆境之后生活仍可以良好的方式继续,但需要灵活性和调整。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd91/7133077/d860bb85aff8/10.1177_2055102920913477-fig1.jpg

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