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巴西的“残疾儿童”项目:科学知识产出的进展与未来展望

DISABKIDS® in Brazil: advances and future perspectives for the production of scientific knowledge.

作者信息

Romeiro Viviane, Bullinger Monika, Marziale Maria Helena Palucci, Fegadolli Claudia, Reis Roberta Alvarenga, Silveira Renata Cristina de Campos Pereira, Costa-Júnior Moacyr Lobo da, Sousa Fátima Aparecida Emm Faleiros, Andrade Valéria Sousa de, Conacci Beatriz Juliana, Nascimento Fernanda Karla, Santos Claudia Benedita Dos

机构信息

Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, PAHO/WHO Collaborating Centre for Nursing Research Development, Ribeirão Preto, SP, Brazil.

University Medical Center Hamburg-Eppendorf, Instituto de Medicina Psicológica, Hamburgo, HB, Germany.

出版信息

Rev Lat Am Enfermagem. 2020 Apr 17;28:e3257. doi: 10.1590/1518-8345.3003.3257. eCollection 2020.

Abstract

OBJECTIVE

to map the Brazilian scientific production related to the stages of the methodological process for the use of DISABKIDS® instruments and/or forms adapted to Brazil.

METHOD

scoping review, with searches conducted on10 electronic databases, plus Google Scholar and contacts with researchers, without restriction of period or language.

RESULTS

the mapping identified 90 scientific studies involving 46 instruments. Of these, 11 (23.9%) included the elaboration and/or cultural adaptation of the DISABKIDS® instruments to measure the Quality of Life of children or adolescents with chronic conditions and 35 (76.1%) used the Generic Measures and/or Specific Modules for the semantic validation of other instruments.

CONCLUSION

this scoping review allowed a comprehensive evaluation of the use of the DISABKIDS® instrument and forms, in relation to the validation of the instrument adapted to Brazil, presenting a positive advance in the scenario with the development of academic/scientific projects in the country, incorporating the method recommended by the literature for the elaboration, cultural adaptation and validation of instruments and for the systematized and standardized recording of the perception and understanding of the target population about the measure of interest, using DISABKIDS® forms adapted for this purpose.

摘要

目的

梳理巴西与使用适用于巴西的 DISABKIDS® 工具和/或表格的方法学过程各阶段相关的科研成果。

方法

进行范围综述,在 10 个电子数据库以及谷歌学术上进行检索,并与研究人员联系,不限时间或语言。

结果

该梳理确定了 90 项涉及 46 种工具的科学研究。其中,11 项(23.9%)包括对 DISABKIDS® 工具进行编制和/或文化调适,以测量慢性病儿童或青少年的生活质量;35 项(76.1%)使用通用量表和/或特定模块对其他工具进行语义验证。

结论

这项范围综述对 DISABKIDS® 工具和表格的使用进行了全面评估,涉及适用于巴西的工具的验证,在该国学术/科研项目的开展方面呈现出积极进展,纳入了文献推荐的工具编制、文化调适和验证方法,以及目标人群对相关测量的认知和理解的系统化、标准化记录方法,为此使用了专门改编的 DISABKIDS® 表格。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c84/7164929/1d600bf0d13b/0104-1169-rlae-28-e3257-gf01.jpg

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