Knitza Johannes, Knevel Rachel, Raza Karim, Bruce Tor, Eimer Ekaterina, Gehring Isabel, Mathsson-Alm Linda, Poorafshar Maryam, Hueber Axel J, Schett Georg, Johannesson Martina, Catrina Anca, Klareskog Lars
Department of Internal Medicine 3 - Rheumatology and Immunology, Friedrich-Alexander University Erlangen-Nürnberg, University Hospital Erlangen, Erlangen, Germany.
Department of Rheumatology, Leiden University Medical Center, Leiden, Netherlands.
JMIR Mhealth Uhealth. 2020 May 15;8(5):e17507. doi: 10.2196/17507.
Outcomes of patients with inflammatory rheumatic diseases have significantly improved over the last three decades, mainly due to therapeutic innovations, more timely treatment, and a recognition of the need to monitor response to treatment and to titrate treatments accordingly. Diagnostic delay remains a major challenge for all stakeholders. The combination of electronic health (eHealth) and serologic and genetic markers holds great promise to improve the current management of patients with inflammatory rheumatic diseases by speeding up access to appropriate care. The Joint Pain Assessment Scoring Tool (JPAST) project, funded by the European Union (EU) European Institute of Innovation and Technology (EIT) Health program, is a unique European project aiming to enable and accelerate personalized precision medicine for early treatment in rheumatology, ultimately also enabling prevention. The aim of the project is to facilitate these goals while at the same time, reducing cost for society and patients.
在过去三十年中,炎症性风湿性疾病患者的治疗结果有了显著改善,这主要归功于治疗方法的创新、更及时的治疗,以及认识到监测治疗反应并据此调整治疗的必要性。诊断延迟仍然是所有利益相关者面临的重大挑战。电子健康(eHealth)与血清学和基因标志物的结合,有望通过加快获得适当治疗的速度,改善炎症性风湿性疾病患者的当前管理。由欧盟(EU)欧洲创新与技术研究所(EIT)健康计划资助的关节疼痛评估评分工具(JPAST)项目,是一个独特的欧洲项目,旨在实现并加速风湿病早期治疗的个性化精准医疗,最终也实现预防。该项目的目标是促进这些目标的实现,同时降低社会和患者的成本。