McNeil Michael J, Namisango Eve, Hunt Jennifer, Powell Richard A, Baker Justin N
University of Tennessee Health Science Center, Department of Hospice and Palliative Medicine, Memphis, TN 38103, USA.
St. Jude Children's Research Hospital, Division of Quality of Life and Palliative Care, Department of Oncology, Memphis, TN 38105, USA.
Children (Basel). 2020 May 1;7(5):39. doi: 10.3390/children7050039.
While great strides have been made in improving childhood mortality, millions of children die each year with significant health-related suffering. More than 98% of these children live in low- and middle-income countries (LMICs). Efforts have been made to increase access to pediatric palliative care (PPC) services to address this suffering in LMICs through policy measures, educational initiatives, and access to essential medicines. However, a core component of high-quality PPC that has been relatively neglected in LMICs is grief and bereavement support for parents after the death of their child. This paper reviews the current literature on parental grief and bereavement in LMICs. This includes describing bereavement research in high-income countries (HICs), including its definition, adverse effect upon parents, and supportive interventions, followed by a review of the literature on health-related grief and bereavement in LMICs, specifically around: perinatal death, infant mortality, infectious disease, interventions used, and perceived need. More research is needed in grief and bereavement of parents in LMICs to provide them with the support they deserve within their specific cultural, social, and religious context. Additionally, these efforts in LMICs will help advance the field of parental grief and bereavement research as a whole.
尽管在降低儿童死亡率方面已取得巨大进展,但每年仍有数百万儿童在承受着与健康相关的巨大痛苦后死亡。这些儿童中超过98%生活在低收入和中等收入国家(LMICs)。人们已通过政策措施、教育倡议以及获取基本药物等方式,努力增加在低收入和中等收入国家获得儿科姑息治疗(PPC)服务的机会,以应对这种痛苦。然而,在低收入和中等收入国家相对被忽视的高质量儿科姑息治疗的一个核心组成部分,是在孩子死亡后为父母提供悲伤和丧亲之痛支持。本文回顾了目前关于低收入和中等收入国家父母悲伤和丧亲之痛的文献。这包括描述高收入国家(HICs)的丧亲之痛研究,包括其定义、对父母的不利影响以及支持性干预措施,随后回顾关于低收入和中等收入国家与健康相关的悲伤和丧亲之痛的文献,具体围绕:围产期死亡、婴儿死亡率、传染病、所采用的干预措施以及感知到的需求。在低收入和中等收入国家,需要更多关于父母悲伤和丧亲之痛的研究,以便在其特定的文化、社会和宗教背景下为他们提供应有的支持。此外,这些在低收入和中等收入国家的努力将有助于推动整个父母悲伤和丧亲之痛研究领域的发展。