Mayland Catriona R, Harding Andrew J E, Preston Nancy, Payne Sheila
Department of Oncology and Metabolism, University of Sheffield, Sheffield, Sheffield, UK; Palliative Care Institute, University of Liverpool, Liverpool, Liverpool, UK.
International Observatory on End of Life Care, University of Lancaster, Lancaster, UK.
J Pain Symptom Manage. 2020 Aug;60(2):e33-e39. doi: 10.1016/j.jpainsymman.2020.05.012. Epub 2020 May 15.
The global COVID-19 pandemic is likely to have a major impact on the experience of death, dying, and bereavement. This study aimed to review and synthesize learning from previous literature focused on the impact on grief and bereavement during other infectious disease outbreaks. We conducted a rapid scoping review according to the principles of the Joanna Briggs Institute and analyzed qualitative data using thematic synthesis. From the 218 identified articles, 6 were included in the analysis. They were four qualitative studies, one observational study, and a systematic review. Studies were conducted in West Africa, Haiti, and Singapore. No research studies have focused on outcomes and support for bereaved people during a pandemic. Studies have tended to focus on survivors who are those who had the illness and recovered, recognizing that some of these individuals will also be bereaved people. Previous pandemics appear to cause multiple losses both directly related to death itself and also in terms of disruption to social norms, rituals, and mourning practices. This affects the ability for an individual to connect with the deceased both before and after the death, potentially increasing the risk of complicated grief. In view of the limited research, specific learning from the current COVID-19 crisis and the impact on the bereaved would be pertinent. Current focus should include innovative ways to promote connection and adapt rituals while maintaining respect. Strong leadership and coordination between different bereavement organisations is essential to providing successful postbereavement support.
全球新冠疫情可能会对死亡、濒死及丧亲之痛的体验产生重大影响。本研究旨在回顾和综合以往文献中关于其他传染病暴发期间对悲伤和丧亲之痛影响的经验教训。我们根据乔安娜·布里格斯研究所的原则进行了快速范围综述,并使用主题综合法分析了定性数据。从筛选出的218篇文章中,6篇被纳入分析。它们包括四项定性研究、一项观察性研究和一项系统综述。研究在西非、海地和新加坡开展。尚无研究关注大流行期间丧亲者的结局及支持情况。研究往往聚焦于幸存者,即患病后康复的人,同时认识到其中一些人也会成为丧亲者。以往的大流行似乎会导致与死亡本身直接相关的多重损失,以及社会规范、仪式和哀悼习俗的破坏。这会影响个人在死亡前后与逝者建立联系的能力,可能增加复杂性悲伤的风险。鉴于研究有限,从当前新冠疫情危机中获取的具体经验教训以及对丧亲者的影响将具有相关性。当前的重点应包括在维护尊重的同时促进联系和调整仪式的创新方法。不同丧亲组织之间强有力的领导和协调对于提供成功的丧亲后支持至关重要。