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负面社会互动和应对行为:灾区照顾特殊需求儿童的日本母亲的经历。

Negative social interactions and coping behaviors: experiences of Japanese mothers caring for children with special needs in disaster areas.

机构信息

Department of Preventive Medicine, St. Marianna University School of Medicine, 2-16-1, Sugao, Miyamae-ku, Kawasaki-shi, Kanagawa, 216-8511, Japan.

出版信息

BMC Res Notes. 2020 May 20;13(1):247. doi: 10.1186/s13104-020-05087-1.

Abstract

OBJECTIVE

This study aims to identify the challenging experiences pertaining negative social interactions and the coping behaviors of mothers of children with special needs after two major earthquakes in Japan. A qualitative content analysis was conducted based on the interviews of 26 mothers of children with special needs who had experienced the Great East Japan Earthquake in 2011 or Kumamoto Earthquake in 2016.

RESULTS

The themes extracted were "perceiving pressures and unfairness," "failing to obtain support and deeper understanding," "realizing child's characteristics that are difficult for others to understand," and "tackling challenges on their own in different ways." The experienced negative social interactions and coping behaviors were found to be similar in both earthquakes. Although the Japanese legislation was amended 2 years after the Great East Japan Earthquake, it may not have had necessarily improved the mothers' situations. Thus, while it is important to provide specific support for families of children with special needs after natural disasters and organize food supplies with a focus on family units, it is also important to increase Japanese society's understanding of the varied characteristics of disabilities.

摘要

目的

本研究旨在识别与负面社会互动相关的挑战经历以及日本两次大地震后特殊需要儿童的母亲的应对行为。对 26 名经历过 2011 年东日本大地震或 2016 年熊本地震的特殊需要儿童的母亲进行了访谈,并对访谈内容进行了定性内容分析。

结果

提取的主题为“感知压力和不公平”、“无法获得支持和更深入的理解”、“意识到孩子的特点难以被他人理解”和“以不同的方式应对挑战”。在两次地震中,经历的负面社会互动和应对行为相似。尽管在东日本大地震后 2 年日本立法进行了修订,但这并不一定改善了母亲们的处境。因此,在为自然灾害后的特殊需要儿童家庭提供具体支持并组织以家庭为单位的食品供应的同时,提高日本社会对残疾多样性的理解也很重要。

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