Syed Imran Haider, Awan Waqar Ahmed, Syeda Unaiza Batool
Department of Sociology, Allama Iqbal Open University, Islamabad, Pakistan.
Riphah College of Rehabilitation & Allied Health Sciences, Riphah International University, Islamabad, Pakistan.
Iran J Public Health. 2020 Feb;49(2):249-256.
Caregiver burden is a multidimensional response to physical, psychological, emotional, social and financial stressors, usually associated with the experience of caring and can be objective or subjective. The objective of current study was o explore the caregiver burden among parents of hearing impaired and intellectually challenged children in Pakistan.
A Comparative cross sectional survey was conducted on n=162 parents of hearing impaired (HI) and intellectually challenged (IC) children from July 2018 to February 2019. Convenient sampling technique was used to collect the data from Parents of hearing impaired and intellectually challenged children with age range 1-16 years in National Institute of Rehabilitation Medicine and Al-Farabi Special Education Institute Islamabad. Caregiver Burden Inventory was used to assess the caregiver burden.
The results showed a greater need for respite and other services in both groups. Parents of intellectually challenged children need more respite and other services as compared to hearing impaired children (60.62±11.43 ver. 45.74±11.20, p<0.001). A total of 3 (4.0%) parents of hearing impaired children reported rare need for respite and other services, 32(42.7%) reported sometimes and 40(53.3%) reported frequent need. On the other hand 12(13.8%) parents of intellectually disabled children reported sometimes, 66(75.9%) reported quite frequently and 9(10.3%) nearly always a greater need for respite and other services.
The parents of hearing impaired or intellectually challenged children face significant burden of their disabled child. In addition, due to cognitive deficits that lead to behavioural abnormalities the parents of intellectually challenged children face more burden and stress.
照顾者负担是对身体、心理、情感、社会和经济压力源的多维度反应，通常与照顾经历相关，可分为客观负担和主观负担。本研究的目的是探讨巴基斯坦听力受损和智力障碍儿童的父母所承受的照顾者负担。
2018年7月至2019年2月，对162名听力受损（HI）和智力障碍（IC）儿童的父母进行了一项比较横断面调查。采用便利抽样技术，从伊斯兰堡国家康复医学研究所和法拉比特殊教育研究所中，选取年龄在1 - 16岁的听力受损和智力障碍儿童的父母收集数据。使用照顾者负担量表评估照顾者负担。
结果显示两组对喘息服务和其他服务的需求都更大。与听力受损儿童的父母相比，智力障碍儿童的父母更需要喘息服务和其他服务（60.62±11.43 对 45.74±11.20，p<0.001）。共有3名（4.0%）听力受损儿童的父母表示很少需要喘息服务和其他服务，32名（42.7%）表示有时需要，40名（53.3%）表示经常需要。另一方面，12名（13.8%）智力障碍儿童的父母表示有时需要，66名（75.9%）表示相当频繁地需要，9名（10.3%）几乎总是更需要喘息服务和其他服务。
听力受损或智力障碍儿童的父母面临着照顾残疾子女的重大负担。此外，由于导致行为异常的认知缺陷，智力障碍儿童的父母面临更多的负担和压力。
