Autonomous Researcher, São Paulo, São Paulo, Brasil.
Programa de Pós-graduação em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil.
Rev Gaucha Enferm. 2020;41:e20190178. doi: 10.1590/1983-1447.2020.20190178. Epub 2020 Jun 1.
To describe the family dynamics and the social support network for families of children with special needs of multiple, complex and continuous care.
A descriptive study of a qualitative approach, carried out in Maringá - PR, having as theoretical and methodological reference the Calgary Model of Family Assessment (CMFA). Data was collected through semi-structured audio-video interviews, carried out in the homes, together with 11 family caregivers of 13 children.
Data is presented in the following categories: structural, developmental and functional evaluation, which show the changes in the family routine and the needs for the adjustment of the roles of its members, in order to better implement the care at home.
Using the CMFA made it possible to identify and understand the composition, fragilities and potentialities of the family, as well as the relationships among its members and rearrangements to better enable care at home. This information favors interventions congruent with the needs of these families.
描述有多重、复杂和持续需求的特殊需要儿童家庭的家庭动态和社会支持网络。
这是一项描述性的定性研究，在巴西的马伦加进行，理论和方法学参考了卡尔加里家庭评估模型（CMFA）。通过半结构化的音频视频访谈收集数据，访谈在家庭中进行，共有 11 名儿童的 13 名家庭照顾者参与。
数据呈现为以下类别：结构、发展和功能评估，这些类别显示了家庭日常生活的变化以及调整其成员角色的需求，以便更好地在家庭中实施护理。
使用 CMFA 可以识别和理解家庭的组成、脆弱性和潜力，以及家庭成员之间的关系和重新安排，以更好地在家中提供护理。这些信息有利于与这些家庭的需求相符的干预措施。
