Luna Puerta L, Smith H E
Family Medicine and Primary Care, Lee Kong Chian School of Medicine, Nanyang Technological University Singapore, Singapore, 308232 Singapore.
Division of Public Health and Primary Care, Brighton and Sussex Medical School, Brighton, BN1 9PH UK.
Res Involv Engagem. 2020 Jun 16;6:31. doi: 10.1186/s40900-020-00205-6. eCollection 2020.
Patient and Public Involvement (PPI) in health research entails doing research 'with' the public. Successful PPI requires a diversity of patients' perspectives and experiences. In Singapore, including the public's voice in research is still in its infancy and different ways of involving the public have to be explored.Our aims were to describe a PPI initiative that enables members of the public to share their ideas and opinions about health research, and to assess the feasibility, accessibility and utility of the initiative.
Building on the concept of the PPI Café used in the west we designed a "PPI Hawker" for Singapore. Here Hawker Centres rather than cafes are used frequently for eating and socialising, providing a one-stop destination for a wide section of society. The PPI facilitators approached people sitting at tables and joined them to discuss questions of relevance to a local research study. Observations and reflexive field notes were used to evaluate the "PPI Hawker's" feasibility, acceptability and utility in the Singaporean community.
In three "PPI Hawkers" we approached 96 people and 72 (75%) engaged in discussions about the design of a population-based research study. The majority (75%) of participants willingly discussed all of the questions posed to them by the researchers, indicating the feasibility of PPI. The PPI participants came from the three major ethnic groups in Singapore and appeared to be broad in age, suggesting "PPI Hawkers" are easily accessible. Both participants and researchers recognised the utility of the "PPI Hawker", reflecting on people's willingness to talk about the research issues, engaging in informative conversations and posing relevant questions.
The "PPI Hawkers" succeeded in engaging the public in conversations about a local population-based study. The public brought to the researchers' attention a variety of previously unheard perspectives about the research. Each event fostered connectivity between professionals and the public, generating among researchers a more positive perception of the power of public involvement."PPI Hawkers" provide an opportunity for co-informed conduct of research studies with diverse members of the public. They create a focus within a community setting for researchers to engage with the public. The resources needed (costs and preparatory time) are relatively few. Not only do "PPI Hawkers" have potential in Singapore, but also for the rest of Asia.
患者及公众参与(PPI)健康研究意味着与公众“共同”开展研究。成功的患者及公众参与需要多种患者视角和经验。在新加坡,将公众声音纳入研究仍处于起步阶段,必须探索让公众参与的不同方式。我们的目标是描述一项患者及公众参与倡议,使公众能够分享他们对健康研究的想法和意见,并评估该倡议的可行性、可及性和实用性。
基于西方使用的患者及公众参与咖啡馆的概念,我们为新加坡设计了一个“患者及公众参与小贩中心”。在这里,小贩中心而非咖啡馆经常被用于饮食和社交,为广大社会群体提供了一站式场所。患者及公众参与促进者走近坐在桌旁的人,与他们一起讨论与当地一项研究相关的问题。观察和反思性实地记录被用于评估“患者及公众参与小贩中心”在新加坡社区的可行性、可接受性和实用性。
在三个“患者及公众参与小贩中心”,我们接触了96人,其中72人(75%)参与了关于一项基于人群的研究设计的讨论。大多数参与者(75%)愿意讨论研究人员向他们提出的所有问题,这表明患者及公众参与是可行的。患者及公众参与参与者来自新加坡的三个主要族群,年龄分布似乎很广,这表明“患者及公众参与小贩中心”很容易到达。参与者和研究人员都认识到“患者及公众参与小贩中心”的实用性,反映出人们愿意谈论研究问题、参与有意义的对话并提出相关问题。
“患者及公众参与小贩中心”成功地让公众参与了关于一项当地基于人群的研究的对话。公众让研究人员注意到了关于该研究的各种此前未被听到的观点。每次活动都促进了专业人员与公众之间的联系,使研究人员对公众参与的力量产生了更积极的看法。“患者及公众参与小贩中心”为与不同公众成员共同开展有充分信息依据的研究提供了机会。它们在社区环境中为研究人员与公众的互动创造了一个焦点。所需资源(成本和准备时间)相对较少。“患者及公众参与小贩中心”不仅在新加坡有潜力,在亚洲其他地区也有潜力。