1 Swansea University, Swansea, Wales, United Kingdom.
2 UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Qual Health Res. 2019 Jul;29(9):1324-1333. doi: 10.1177/1049732318813558. Epub 2019 Jan 2.
Gypsy, Roma, and Traveller people are marginalized worldwide and experience severe health inequalities, even in comparison to other ethnic minority groups. While diverse and hard to categorize, these communities are highly cohesive and members have a strong sense of identity as a group apart from the majority population. Researchers commonly experience challenges in accessing, recruiting, and retaining research participants from these communities, linked to their outsider status, insular nature, and history of discrimination. In this article, the challenges and the opportunities of engaging Gypsies, Roma, and Travellers in a multicenter qualitative research project are discussed. The management of public involvement and community engagement in this U.K.-based project provides insights into conducting research effectively with ethnically and linguistically diverse communities, often considered to be "hard to reach."
吉普赛人、罗姆人和游民在全世界都处于边缘化地位,他们面临着严重的健康不平等,即使与其他少数族裔群体相比也是如此。这些群体虽然多样化且难以归类,但他们非常团结,成员们强烈认同自己是与多数人口不同的群体。研究人员在接触、招募和留住这些社区的研究参与者方面经常面临挑战,这与他们的局外人地位、孤立的性质和历史上的歧视有关。本文讨论了在一个多中心定性研究项目中与吉普赛人、罗姆人和游民接触的挑战和机遇。该项目在英国的公众参与和社区参与管理为如何有效地与通常被认为是“难以接触”的族裔和语言多样化社区开展研究提供了一些见解。