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英国家长照顾 ADHD 儿童的健康和福祉负担有多重?

What Is the Health and Well-Being Burden for Parents Living With a Child With ADHD in the United Kingdom?

机构信息

School of Health and Related Research (ScHARR), Sheffield, UK.

Cambridgeshire and Peterborough NHS Foundation Trust, Cambridge, UK.

出版信息

J Atten Disord. 2021 Dec;25(14):1962-1976. doi: 10.1177/1087054720925899. Epub 2020 Jun 19.

DOI:10.1177/1087054720925899
PMID:32552265
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8527548/
Abstract

To explore the burden associated with childhood ADHD in a large observational study. We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. We found significant negative impacts of childhood ADHD on parents'/carers' hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short-Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.

摘要

在一项大型观察性研究中探索与儿童 ADHD 相关的负担。我们通过英国 15 家 NHS 信托机构招募了至少有一名患有 ADHD 的儿童(6-18 岁)的家庭,并从所有家庭成员那里收集数据。我们进行了仔细的调整,以确保与两个不同的对照组进行相似的比较,并探讨了控制父母/照顾者 ADHD 筛查、就业和关系状况的影响。我们发现,儿童 ADHD 对父母/照顾者的工作时间和睡眠质量、休闲时间满意度以及健康相关生活质量(通过 EuroQol-5D [EQ-5D] 衡量)产生了显著的负面影响。我们发现生活满意度、心理健康(通过短沃里克爱丁堡心理健康量表 [S-WEMWBS] 衡量)和亲密关系满意度下降,但在不同的对照组中并不总是稳健。我们没有发现健康、自我报告的健康状况或收入满意度有任何下降。该研究通过对英国 ADHD 诊所就诊家庭的调查,量化了患有 ADHD 的儿童的父母的健康和幸福感所受到的影响。

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