青少年血液癌幸存者与先天性心脏病患者的韧性和生活质量比较：一项横断面研究。
Comparison of resilience and quality of life between adolescent blood cancer survivors and those with congenital heart disease: a cross sectional study.
机构信息
College of Nursing, The Catholic University of Korea, 222 Banpo-daero, Seocho-gu, Seoul, 06591, South Korea.
Department of Pediatrics, Seoul St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Seoul, South Korea.
出版信息
Health Qual Life Outcomes. 2020 Jul 14;18(1):231. doi: 10.1186/s12955-020-01487-w.
BACKGROUND
The resilience and Quality of Life (QOL) of adolescent cancer survivors was compared with those of children with other diseases to identify the patterns and factors that affect resilience and QOL The purpose of the present study was to compare the resilience and QOL between adolescent blood cancer survivors and adolescents with Congenital Heart Disease (CHD).
METHODS
A cross-sectional study was conducted in two hospitals. Ninety-four adolescent blood cancer survivors and 81 adolescents with CHD completed a self-reported questionnaire regarding resilience, QOL, and general characteristics. Independent t-test and ANCOVA were used to compare the resilience and QOL between adolescent blood cancer survivors and adolescents with CHD.
RESULTS
The resilience of adolescent blood cancer survivors was significantly lower than that of adolescents with CHD, and the QOL of adolescent blood cancer survivors was not different from that of adolescents with CHD.
CONCLUSIONS
The experiences of adolescent blood cancer survivors were different from those of adolescents with CHD even though they are of the same ages. Adolescents with chronic disease have a different level of illness controllability and self-regulation according to their disease and situation. Therefore, health-providers need to develop the specific programs for improving resilience and QOL of adolescents with chronic illness with focusing their characteristics and situations.
背景
为了识别影响青少年癌症幸存者韧性和生活质量（QOL）的模式和因素，本研究将青少年癌症幸存者与患有其他疾病的儿童进行了比较。本研究的目的是比较青少年血液癌幸存者和先天性心脏病（CHD）青少年之间的韧性和 QOL。
方法
在两家医院进行了一项横断面研究。94 名青少年血液癌幸存者和 81 名患有 CHD 的青少年完成了一份关于韧性、QOL 和一般特征的自我报告问卷。采用独立 t 检验和协方差分析比较青少年血液癌幸存者和 CHD 青少年之间的韧性和 QOL。
结果
青少年血液癌幸存者的韧性明显低于 CHD 青少年，而青少年血液癌幸存者的 QOL 与 CHD 青少年无差异。
结论
尽管年龄相同，但青少年血液癌幸存者的经历与 CHD 青少年不同。患有慢性病的青少年根据其疾病和情况，具有不同的疾病可控性和自我调节能力。因此，卫生保健提供者需要根据青少年慢性病的特点和情况，制定专门的提高韧性和 QOL 的方案。
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