Center for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.
Department of Occupational Therapy, Northern Arizona University, Phoenix, AZ 85004, USA.
Int J Environ Res Public Health. 2020 Jul 21;17(14):5245. doi: 10.3390/ijerph17145245.
Community-based participatory research (CBPR) has been documented as an effective approach to research with underserved communities, particularly with racial and ethnic minority groups. However, much of the literature promoting the use of CBPR with underserved communities is written from the perspective of the researchers and not from the perspective of the community partner. The purpose of this article is to capture lessons learned from the community partners' insight gained through their experiences with CBPR. A multi-investigator consensus method was used to qualitatively code the transcripts of a CBPR story-telling video series. Seven major themes were identified: (1) expectations for engaging in research, (2) cultural humility, (3) respecting the partnership, (4) open communication, (5) genuine commitment, (6) valuing strengths and recognizing capacities, and (7) collaborating to yield meaningful results. The themes drawn from the community partner's voice align with the tenets of CBPR advanced in the academic literature. More opportunities to include the community voice when promoting CBPR should be undertaken to help introduce the concepts to potential community partners who may be research cautious.
社区参与式研究（CBPR）已被证明是一种与服务不足社区合作的有效方法，特别是与种族和少数民族群体合作。然而，许多提倡将 CBPR 用于服务不足社区的文献都是从研究人员的角度撰写的，而不是从社区合作伙伴的角度撰写的。本文的目的是从社区合作伙伴的角度，通过他们在 CBPR 中的经验，了解所学到的经验教训。采用多调查员共识方法对 CBPR 故事讲述视频系列的转录本进行定性编码。确定了七个主要主题：（1）参与研究的期望，（2）文化谦逊，（3）尊重合作伙伴关系，（4）开放沟通，（5）真诚的承诺，（6）重视优势和认识能力，以及（7）合作以产生有意义的结果。从社区合作伙伴的角度得出的主题与学术文献中提出的 CBPR 原则一致。在推广 CBPR 时，应更多地提供机会让社区发表意见，以帮助向可能对研究持谨慎态度的潜在社区合作伙伴介绍这些概念。
