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癌症护理者的在线社交支持:CaringBridge 上的请求与提供之间的一致性。

Online social support for cancer caregivers: alignment between requests and offers on CaringBridge.

机构信息

St David's School of Nursing, Texas State University, Round Rock, Texas, USA.

College of Nursing, The University of Utah, Salt Lake City, Utah, USA.

出版信息

J Psychosoc Oncol. 2021;39(1):118-134. doi: 10.1080/07347332.2020.1806174. Epub 2020 Aug 24.

DOI:10.1080/07347332.2020.1806174
PMID:32835649
Abstract

OBJECTIVES

Exploring CaringBridge, we describe types of social support caregivers requested, types of social support offered, and the alignment between the two.

RESEARCH APPROACH

A retrospective, longitudinal, descriptive approach.

SAMPLE

Twenty public CaringBridge sites.

METHODOLOGICAL APPROACH

The Social Support Behavior Code system was adapted and applied to cancer-caregiver journal entries ( = 389) and guestbook posts ( = 2,466) to identify types of support (emotional, esteem, informational, network, tangible, and no support requested/offered). Matches between requests and offers were examined.

FINDINGS

Cancer caregivers requested different types of support from their guests, most commonly emotional support. However, in most posts, caregivers did not request any support ( = 238, 61.18%). Guests offered all support types, but predominately offered emotional support ( = 2,353, 95%). When support was requested, 66.67% of requests received a matched offer within 24 hours.

INTERPRETATION

Social media platforms may provide all types of support to caregivers.

摘要

目的

探索 CaringBridge 网站,描述照顾者所请求的社会支持类型、提供的社会支持类型,以及两者之间的匹配情况。

研究方法

回顾性、纵向、描述性方法。

样本

20 个公共 CaringBridge 网站。

方法

改编并应用社会支持行为编码系统,对癌症照顾者的日记条目( = 389)和留言簿帖子( = 2,466)进行分析,以确定支持类型(情感、尊重、信息、网络、有形和无请求/提供的支持)。检查请求与提供之间的匹配情况。

结果

癌症照顾者向访客请求不同类型的支持,最常见的是情感支持。然而,在大多数帖子中,照顾者没有请求任何支持( = 238,61.18%)。访客提供了所有支持类型,但主要提供情感支持( = 2,353,95%)。当有支持请求时,66.67%的请求在 24 小时内得到了匹配的回应。

解释

社交媒体平台可能为照顾者提供所有类型的支持。

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