Gross O, Garabedian N, Richard C, Citrini M, Sannié T, Gagnayre R
Health Education and Practices Laboratory (LEPS UR3412) University Sorbonne Paris Nord, 74 rue Marcel Cachin, 93017 Bobigny, France.
Hôpital Necker-Enfants Malades, President of the medical board of Paris Universities Hospitals, Paris, France.
Res Involv Engagem. 2020 Sep 1;6:50. doi: 10.1186/s40900-020-00226-1. eCollection 2020.
In France, following the passing of a 2002 law, service user representatives (SURs) are part of hospital committees in charge of care quality and safety issues. Ten service user representatives (SURs) were recruited and trained as "peer researchers" to participate in all phases of a study aimed at outlining how patients experience hospital safety. This article aims to describe the study protocol and how peer researchers training was designed and implemented to prepare them to drive a qualitative and quantitative research. It also examines the challenges related to collaborative research and how these were resolved.
The way our training was conceived belongs to the field of "design-based research", known for its pragmatic and collaborative scope, in which viewpoints of all participants are included. Our training was therefore based on peer researchers and research sponsors expectations, as well as on recommendations of the literature.
A 45-h training was held. While the program was meant to train peer researchers to respect scientific norms, it also aimed to improve their sense of self-legitimacy as they navigated their new role. Peer researchers were particularly eager to understand meaning behind the instructions, especially in the field of ethical and scientific norms. Various challenges occurred related to project organization, recruitment and peer researchers involvement. Some issues were overcome by learning how to share control over the research process.
This experiment highlights the importance of a training program's duration and quality to prepare SURs for their roles as peer investigators and to create a group dynamic around a research project, even with SURs familiar with patient involvement and our research theme (safety issues). Trainers overcame hurdles by being adaptive and by using educational approaches. They also learned to include trainees' input, even when it forced them to reconsider their own assumptions.
在法国，自2002年一项法律通过后，服务使用者代表成为负责医疗质量和安全问题的医院委员会的一部分。招募了十名服务使用者代表并将其培训为“同行研究者”，以参与一项旨在概述患者如何体验医院安全的研究的各个阶段。本文旨在描述研究方案，以及同行研究者培训是如何设计和实施的，以使他们有能力开展定性和定量研究。本文还探讨了与合作研究相关的挑战以及如何解决这些挑战。
我们的培训设计方式属于“基于设计的研究”领域，该领域以务实和合作的范围而闻名，其中纳入了所有参与者的观点。因此，我们的培训基于同行研究者和研究资助者的期望以及文献建议。
开展了为期45小时的培训。该项目旨在培训同行研究者遵守科学规范，同时还旨在增强他们在适应新角色过程中的自我认同感。同行研究者特别渴望理解各项指示背后的含义，尤其是在伦理和科学规范领域。在项目组织、招募和同行研究者参与方面出现了各种挑战。通过学习如何共享对研究过程的控制权，一些问题得以解决。
该实验凸显了培训项目的时长和质量对于让服务使用者代表做好担任同行研究者的准备以及围绕研究项目营造团队活力的重要性，即便服务使用者代表熟悉患者参与情况和我们的研究主题（安全问题）。培训者通过灵活应变和采用教育方法克服了障碍。他们还学会纳入受训者的意见，即使这迫使他们重新审视自己的假设。
