Acaster Sarah, Gallop Katy, de Vries Jane, Marciniak Anne, Ryan Robert, Vereda Andrea, Knibb Rebecca
Acaster Lloyd Consulting Ltd, 16 Woburn Pl, Bloomsbury, London, WC1H 0BS UK.
Independent Consultant to Aimmune Therapeutics, London, UK.
Allergy Asthma Clin Immunol. 2020 Sep 25;16:83. doi: 10.1186/s13223-020-00477-3. eCollection 2020.
Limited previous research has assessed the psychosocial burden and productivity impact of caring for a child with peanut allergy and factors associated with burden. The objective of this research was to explore caregiver burden in terms of psychosocial and productivity impact of caring for a child with peanut allergy, the influence of caregiver and child gender on caregiver burden, and factors predicting caregiver burden in peanut allergy.
A cross-sectional survey of caregivers of children with peanut allergy was conducted in the United Kingdom, and included sociodemographic and clinical questions, EQ-5D, Hospital Anxiety and Depression Scale, Food Allergy Quality of Life-Parental Burden, Food Allergy Independent Measure, and productivity questions.
One hundred caregivers (55% female) of children with peanut allergy (aged 4-15 years) completed the survey. Male and female caregivers reported mean levels of anxiety significantly higher than United Kingdom population norms. Caregivers of children with severe peanut allergy reported significant impacts on their careers and health-related quality of life. Neither caregiver nor child gender impacted burden, indicating that male and female caregivers are equally anxious and suffer the same level of negative career, productivity, and health-related quality-of-life impact due to their child's peanut allergy. Caregivers' perceived risk of outcomes related to their child's peanut allergy (e.g., death or severe reaction) as measured by the Food Allergy Independent Measure independently predicted burden.
Caregivers of children with peanut allergy in the United Kingdom experience health-related quality-of-life, psychosocial, and productivity burden; this study demonstrates the high levels of anxiety reported by both male and female caregivers.
以往有限的研究评估了照顾花生过敏儿童的心理社会负担、对生产力的影响以及与负担相关的因素。本研究的目的是探讨照顾花生过敏儿童在心理社会和生产力方面的负担、照顾者和儿童性别对照顾者负担的影响，以及预测花生过敏照顾者负担的因素。
在英国对花生过敏儿童的照顾者进行了一项横断面调查，包括社会人口统计学和临床问题、EQ-5D、医院焦虑和抑郁量表、食物过敏生活质量-父母负担、食物过敏独立测量以及生产力问题。
100名花生过敏儿童（4至15岁）的照顾者（55%为女性）完成了调查。男性和女性照顾者报告的焦虑平均水平显著高于英国人口规范。患有严重花生过敏儿童的照顾者报告称其职业和健康相关生活质量受到了重大影响。照顾者和儿童的性别均未影响负担，这表明男性和女性照顾者同样焦虑，并且由于其孩子的花生过敏，他们在职业、生产力以及与健康相关的生活质量方面受到的负面影响程度相同。通过食物过敏独立测量所衡量的照顾者对与孩子花生过敏相关结果（如死亡或严重反应）的感知风险独立预测了负担。
英国花生过敏儿童的照顾者经历了与健康相关的生活质量、心理社会和生产力负担；本研究表明男性和女性照顾者均报告了高水平的焦虑。
