Department of Urology, New York University and Manhattan Veterans Affairs, New York, NY, USA; Department of Population Health, New York University, New York, NY, USA.
Department of Urology, University of North Carolina, Chapel Hill, NC, USA.
Eur Urol. 2021 Jan;79(1):56-59. doi: 10.1016/j.eururo.2020.09.014. Epub 2020 Oct 1.
Dissemination of misinformation through social media is a major societal issue. Bladder cancer is the second most common urological cancer in the world, but there are limited data on the quality of bladder cancer information on social networks. Our objective was to characterize the quality of information and presence of misinformation about bladder cancer on YouTube, the most commonly used social media platform. We reviewed the first 150 YouTube videos about "bladder cancer" using two validated instruments for consumer health information and assessed the videos for the presence of misinformation. The videos had a median of 2288 views (range, 14-511 342), but the overall quality of information was moderate to poor in 67%, based on scores of 1-3 out of 5 on the validated DISCERN instrument. A moderate to high amount of misinformation was present in 21% of videos and reached 1 289 314 viewers. Commercial bias was apparent in 17% of videos, which reached 324 287 viewers. From a networking perspective, comments sections in the videos were sometimes used to request medical advice (20%), provide medical advice to others (9%), or give support (19%). In conclusion, YouTube is a widely used source of information and advice about bladder cancer, but much of the content is of poor quality. PATIENT SUMMARY: A large quantity of content about bladder cancer is available on YouTube. Unfortunately, much of the content is of moderate to poor quality and presents a risk of exposure to misinformation.
社交媒体上的错误信息传播是一个重大的社会问题。膀胱癌是全世界第二常见的泌尿系统癌症，但关于社交网络上膀胱癌信息质量的数据有限。我们的目的是描述 YouTube 上关于膀胱癌信息的质量和错误信息的存在情况，YouTube 是使用最广泛的社交媒体平台之一。我们使用两个经过验证的消费者健康信息工具来审查了前 150 个关于“膀胱癌”的 YouTube 视频，并评估了视频中是否存在错误信息。这些视频的中位数观看次数为 2288 次（范围为 14-511342 次），但根据经过验证的 DISCERN 工具，5 分制中得分为 1-3 分的视频，信息质量总体处于中等至较差水平。21%的视频存在中度至高度错误信息，观看人数达到 1289314 人。17%的视频存在商业偏见，观看人数达到 324287 人。从网络角度来看，视频的评论部分有时被用于请求医疗建议（20%）、向他人提供医疗建议（9%）或提供支持（19%）。总之，YouTube 是一个广泛使用的膀胱癌信息和建议来源，但大部分内容质量较差。患者总结：大量关于膀胱癌的内容可在 YouTube 上获得。不幸的是，大部分内容的质量中等至较差，并存在暴露于错误信息的风险。
