Mastronardi Mauro, Curlo Margherita, Polignano Maurizio, Vena Natalino, Rossi Daniela, Giannelli Gianluigi
National Institute of Gastroenterology, "Saverio de Bellis" Research Hospital, 70013 Castellana Grotte, Italy.
Healthcare (Basel). 2020 Oct 1;8(4):377. doi: 10.3390/healthcare8040377.
Once the WHO declared the Sars-CoV-2 pandemic, the world had to reprogram numerous clinical activities, particularly those related to highly disabling diseases such as inflammatory bowel diseases (IBDs). In this study, 1083 IBD patients were assessed, affected by Crohn's Disease (CD) and Ulcerative Colitis (UC), and subdivided into two groups. The first group included patients who needed treatment in person at the outpatients clinic, while the second group could be tele-monitored because they were able to self-administer therapy. The tele-monitoring was based on telecommunication applications via smartphone, driven by a dedicated clinical control room in the IBD Clinic. The aim of this study was to assess the quality of life (using IBDQ32) of UC patients and tele-monitored CD patients (tele-monitoring group) as compared to those patients who underwent assessment in person in the outpatients clinic (control group). Despite observing a lower number of relapses in the control group than the tele-monitoring group, there were no statistically significant differences between the groups in terms of the IBD32Q scores. Tele-monitoring of patients who are able to self-administer the IBD therapy can be an effective vicarious system as compared to the clinical evaluation in person, that could lead to important changes to avoid the overcrowding of the IBD outpatients clinic, especially during public health crises like the present pandemic.
世界卫生组织宣布新型冠状病毒肺炎大流行后，全球不得不重新规划众多临床活动，尤其是那些与炎症性肠病（IBD）等严重致残性疾病相关的活动。在本研究中，对1083例受克罗恩病（CD）和溃疡性结肠炎（UC）影响的IBD患者进行了评估，并将其分为两组。第一组包括需要在门诊亲自接受治疗的患者，而第二组患者由于能够自行给药，因此可以进行远程监测。远程监测基于通过智能手机的电信应用程序，由IBD诊所的一个专门临床控制室驱动。本研究的目的是评估UC患者和接受远程监测的CD患者（远程监测组）与在门诊亲自接受评估的患者（对照组）相比的生活质量（使用IBDQ32）。尽管观察到对照组的复发次数低于远程监测组，但两组在IBD32Q评分方面没有统计学上的显著差异。与亲自进行临床评估相比，对能够自行进行IBD治疗的患者进行远程监测可能是一种有效的替代系统，这可能会带来重要改变，以避免IBD门诊过度拥挤，尤其是在当前大流行这样的公共卫生危机期间。
