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评论:“你的疾病风险”在线 20 年。

Commentary: 20 years online with "Your Disease Risk".

机构信息

Division of Public Health Sciences and Alvin J. Siteman Cancer Center, Department of Surgery, Washington University School of Medicine, Washington University in St. Louis, 660 South Euclid Avenue, Campus, Box 8100, St. Louis, MO, 63110, USA.

出版信息

Cancer Causes Control. 2021 Jan;32(1):5-11. doi: 10.1007/s10552-020-01356-3. Epub 2020 Oct 17.

DOI:10.1007/s10552-020-01356-3
PMID:33068181
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7796866/
Abstract

The Your Disease Risk tool ( yourdiseaserisk.wustl.edu ) went live to the public in January 2000 and was one of the first personalized health risk assessment sites on the Internet. Its launch marked the culmination of years of work by a large, multi-disciplinary university team whose primary goal was to translate the science on cancer prevention into accurate, engaging, and useful messages for the public. Today, 20 years on, Your Disease Risk has expanded from its initial four cancers to include 18 different tools designed for today's users. This commentary reviews important moments and lessons learned in the first two decades of Your Disease Risk.

摘要

Your Disease Risk 工具(yourdiseaserisk.wustl.edu)于 2000 年 1 月向公众推出,是互联网上最早的个人健康风险评估网站之一。它的推出标志着一个大型多学科大学团队多年工作的高潮,其主要目标是将癌症预防科学转化为公众准确、吸引人且有用的信息。今天,20 年后,Your Disease Risk 已经从最初的四种癌症扩展到包括 18 种不同的工具,以满足当今用户的需求。本文评论回顾了 Your Disease Risk 前 20 年的重要时刻和经验教训。

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本文引用的文献

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Effect of communicating personalized rheumatoid arthritis risk on concern for developing RA: A randomized controlled trial.沟通个体化类风湿关节炎风险对关注自身罹患类风湿关节炎的影响:一项随机对照试验。
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基于网络的个性化类风湿关节炎风险工具的有效性,有无健康教育者对类风湿关节炎风险因素知识的影响。
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Development of a Cancer Risk Prediction Tool for Use in the UK Primary Care and Community Settings.用于英国初级保健和社区环境的癌症风险预测工具的开发。
Cancer Prev Res (Phila). 2017 Jul;10(7):421-430. doi: 10.1158/1940-6207.CAPR-16-0288. Epub 2017 May 30.
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Using an Internet-Based Breast Cancer Risk Assessment Tool to Improve Social-Cognitive Precursors of Physical Activity.使用基于互联网的乳腺癌风险评估工具改善身体活动的社会认知先兆因素。
Med Decis Making. 2017 Aug;37(6):657-669. doi: 10.1177/0272989X17699835. Epub 2017 Mar 31.
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A Cluster Randomized Trial of a Personalized Multi-Condition Risk Assessment in Primary Care.一项初级保健中个性化多病症风险评估的整群随机试验。
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Validation of a risk prediction tool for coronary heart disease in middle-aged women.中年女性冠心病风险预测工具的验证
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The readability of online breast cancer risk assessment tools.在线乳腺癌风险评估工具的可读性。
Breast Cancer Res Treat. 2015 Nov;154(1):191-9. doi: 10.1007/s10549-015-3601-2.
9
Personalized Risk Estimator for Rheumatoid Arthritis (PRE-RA) Family Study: rationale and design for a randomized controlled trial evaluating rheumatoid arthritis risk education to first-degree relatives.类风湿关节炎个性化风险评估器(PRE-RA)家族研究:一项评估向一级亲属进行类风湿关节炎风险教育的随机对照试验的原理与设计
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The value of personalised risk information: a qualitative study of the perceptions of patients with prostate cancer.个体化风险信息的价值:一项对前列腺癌患者认知的定性研究。
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