Marfil-Gómez Raquel, Morales-Puerto Marta, León-Campos Álvaro, Morales-Asencio José Miguel, Morilla-Herrera Juan Carlos, Timonet-Andreu Eva, Cuevas-Fernández Gallego Magdalena, Martí-García Celia, López-Leiva Inmaculada, García-Mayor Silvia
Department of Nursing, Faculty of Health Sciences, University of Málaga, 29017 Málaga, Spain.
Agencia Sanitaria Costa del Sol. Marbella, 29651 Málaga, Spain.
Int J Environ Res Public Health. 2020 Oct 15;17(20):7489. doi: 10.3390/ijerph17207489.
informal caregivers have a high risk of suffering from diseases derived from the chronic stress to which they are subjected for their dedication to the care of their relatives. Such stress has a direct influence on the person cared for, mainly affecting the quality of their care. Therefore, the aim of the present study is to assess the association of caregiving on physical and mental perceived health in family caregivers of dependent adults with complex chronic diseases.
a prospective longitudinal cohort study, with a follow-up period of 36 months (HUELLA cohort). The exposed cohort will be formed by family caregivers of dependent patients with complex chronic pathologies. The unexposed cohort will be taken from the general population adjusted for age, sex and health. Outcome variables will include attendance to health services, consumption of psychoactive drugs, dedication to care (only in exposed cohort), concession of the Act on Promotion of Personal Autonomy and Care for dependent persons (exposed only), perceived physical and mental health, depression level, burden level and new diagnosis of chronic pathology of the caregiver during the study.
the expected results will be applicable and will incorporate improvements to the usual health system clinical practice, providing feedback to professionals dedicated to the provision, planning and design of services to family caregivers, as well as to groups and organizations of caregivers.
investments in preventing low-quality informal care are key, mainly through early identification and interventions to support caregivers who suffer from stress, anxiety or depression.
非正式照料者因全身心投入照料亲属而承受慢性压力，患疾病的风险很高。这种压力对被照料者有直接影响，主要影响其照料质量。因此，本研究的目的是评估照料对患有复杂慢性病的成年依赖者家庭照料者的身心健康的影响。
一项前瞻性纵向队列研究，随访期为36个月（HUELLA队列）。暴露队列将由患有复杂慢性疾病的依赖患者的家庭照料者组成。非暴露队列将从根据年龄、性别和健康状况进行调整的普通人群中选取。结果变量将包括就医情况、精神活性药物的使用、照料投入（仅在暴露队列中）、《促进个人自主和照料依赖者法案》的适用情况（仅暴露组）、身心健康感知、抑郁水平、负担水平以及研究期间照料者慢性疾病的新诊断情况。
预期结果将具有适用性，并将对常规卫生系统临床实践进行改进，为致力于为家庭照料者提供、规划和设计服务的专业人员以及照料者团体和组织提供反馈。
预防低质量非正式照料的投资至关重要，主要通过早期识别和干预来支持遭受压力、焦虑或抑郁的照料者。
