Berkovic Danielle, Ackerman Ilana N, Briggs Andrew M, Ayton Darshini
School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
School of Physiotherapy and Exercise Science, Curtin University, Perth, Australia.
J Med Internet Res. 2020 Dec 3;22(12):e24550. doi: 10.2196/24550.
Emerging evidence suggests that people with arthritis are reporting increased physical pain and psychological distress during the COVID-19 pandemic. At the same time, Twitter's daily usage has surged by 23% throughout the pandemic period, presenting a unique opportunity to assess the content and sentiment of tweets. Individuals with arthritis use Twitter to communicate with peers, and to receive up-to-date information from health professionals and services about novel therapies and management techniques.
The aim of this research was to identify proxy topics of importance for individuals with arthritis during the COVID-19 pandemic, and to explore the emotional context of tweets by people with arthritis during the early phase of the pandemic.
From March 20 to April 20, 2020, publicly available tweets posted in English and with hashtag combinations related to arthritis and COVID-19 were extracted retrospectively from Twitter. Content analysis was used to identify common themes within tweets, and sentiment analysis was used to examine positive and negative emotions in themes to understand the COVID-19 experiences of people with arthritis.
In total, 149 tweets were analyzed. The majority of tweeters were female and were from the United States. Tweeters reported a range of arthritis conditions, including rheumatoid arthritis, systemic lupus erythematosus, and psoriatic arthritis. Seven themes were identified: health care experiences, personal stories, links to relevant blogs, discussion of arthritis-related symptoms, advice sharing, messages of positivity, and stay-at-home messaging. Sentiment analysis demonstrated marked anxiety around medication shortages, increased physical symptom burden, and strong desire for trustworthy information and emotional connection.
Tweets by people with arthritis highlight the multitude of concurrent concerns during the COVID-19 pandemic. Understanding these concerns, which include heightened physical and psychological symptoms in the context of treatment misinformation, may assist clinicians to provide person-centered care during this time of great health uncertainty.
新出现的证据表明,关节炎患者称在新冠疫情期间身体疼痛加剧,心理压力增大。与此同时,在整个疫情期间,推特的日使用量激增了23%,这为评估推文内容和情绪提供了一个独特的机会。患有关节炎的人利用推特与同龄人交流,并从医疗专业人员和服务机构获取有关新疗法和管理技巧的最新信息。
本研究的目的是确定新冠疫情期间对关节炎患者而言重要的替代话题,并探讨疫情早期关节炎患者推文的情感背景。
2020年3月20日至4月20日,从推特上回顾性提取以英文发布且带有与关节炎和新冠疫情相关的主题标签组合的公开推文。采用内容分析法确定推文中的共同主题,并使用情感分析法检测主题中的积极和消极情绪,以了解关节炎患者的新冠疫情经历。
共分析了149条推文。大多数推特用户为女性,来自美国。推特用户报告了一系列关节炎病症,包括类风湿性关节炎、系统性红斑狼疮和银屑病关节炎。确定了七个主题:医疗保健经历、个人故事、相关博客链接、关节炎相关症状讨论、建议分享、积极信息、居家信息。情感分析表明,围绕药物短缺、身体症状负担加重存在明显焦虑,以及对可靠信息和情感联系的强烈渴望。
关节炎患者的推文凸显了新冠疫情期间同时存在的诸多担忧。了解这些担忧,其中包括在治疗错误信息背景下身体和心理症状加剧的情况,可能有助于临床医生在这个健康状况高度不确定的时期提供以患者为中心的护理。