Heslop Pauline, Byrne Victoria, Calkin Rachel, Gielnik Kamila, Huxor Avon
1980University of Bristol, UK.
J Intellect Disabil. 2022 Mar;26(1):264-280. doi: 10.1177/1744629520970365. Epub 2020 Nov 18.
In England, the national mortality review programme for people with intellectual disabilities, the LeDeR programme, was established in 2015. The programme supports local areas to review the deaths of all people with intellectual disabilities aged 4 years and over. Each death has an initial review; if indicated, a full multi-agency review takes place. The learning from the mortality reviews contributes to service improvements locally and nationally. This paper describes the programme's introduction and processes, exploring the challenges faced, and the successes achieved. It considers the background and rationale for the programme and the steps taken during its implementation, in order that others can learn from our experiences. Now the programme is established, its focus needs to shift so that we have a better understanding about how the findings of mortality reviews are leading to local and national service improvements and their impact.
在英国，针对智障人士的全国死亡情况审查项目——“智障人士死亡审查项目”（LeDeR项目）于2015年设立。该项目支持各地区对所有4岁及以上智障人士的死亡情况进行审查。每例死亡都会进行初步审查；如有必要，还会开展全面的多机构审查。从死亡情况审查中吸取的经验教训有助于地方和全国范围内的服务改进。本文介绍了该项目的引入和流程，探讨了所面临的挑战以及取得的成功。它考量了该项目的背景和理论依据以及实施过程中采取的步骤，以便其他人能从我们的经验中学习。现在该项目已设立，其重点需要转移，以便我们能更好地了解死亡情况审查的结果是如何推动地方和全国服务改进及其影响的。
