Eder Milton Mickey, Patten Christi A, Brockman Tabetha A, Hendricks Deborah, Valdez-Soto Miguel, Zavala-Rocha Maria, Amelang Miriam, Wi Chung, Major-Elechi Brittny, Balls-Berry Joyce Joy E
Department of Family Medicine and Community Health, University of Minnesota, Minneapolis, MN, USA.
Center and Translational Science Institute, Academic Health Center, University of Minnesota, Minneapolis, MN, USA.
J Clin Transl Sci. 2019 Sep 12;4(5):416-424. doi: 10.1017/cts.2019.417.
Researchers have explored using the internet and social media to recruit participants to specific research projects. Less systematic work has been done to inform the engagement of large populations in virtual communities to advance clinical and translational science. We report on our first step to use social media to engage Minnesota residents by studying the willingness of participants to engage in a virtual (Facebook) community about the concepts of health and health-related research.
Data were collected at the 2018 Minnesota State Fair using a cross-sectional, 46-item survey with assessment including sociodemographics and willingness to engage in a Facebook group for health-related research. Quantitative analysis included univariate, bivariate, and multivariate analyses. Content analysis was used to generate themes from open-ended survey responses.
Five hundred people completed the survey; after data cleaning, 418 participant responses informed this report. A majority were younger than age 50 (73%), female (66%), and married/partnered (54%). Overall, 46% of participants agreed/strongly agreed they are willing to join the Facebook group. Multivariate logistic regression identified social media use over the past 6 months as the sole variable independently associated with willingness to join the Facebook group (once a day vs. never or rarely OR = 1.82 (0.86, 3.88), several hours a day vs. never or rarely OR = 2.17 (1.17, 4.02, overall p-value 0.048).
Facebook holds potential for reaching a broader community, democratizing access to and engagement with clinical and translational research. Social media infrastructure and content could be disseminated to other institutions with Clinical and Translational Science Awards.
研究人员已探索利用互联网和社交媒体招募特定研究项目的参与者。在促使大量人群参与虚拟社区以推动临床和转化科学方面，系统性工作做得较少。我们报告了利用社交媒体让明尼苏达州居民参与的第一步，即研究参与者参与一个关于健康及健康相关研究概念的虚拟（脸书）社区的意愿。
2018年明尼苏达州博览会上收集数据，采用一项包含46个项目的横断面调查，评估内容包括社会人口统计学信息以及参与一个与健康相关研究的脸书群组的意愿。定量分析包括单变量、双变量和多变量分析。内容分析用于从开放式调查回复中生成主题。
500人完成了调查；数据清理后，418份参与者回复为该报告提供了依据。大多数参与者年龄小于50岁（73%），女性（66%），已婚/有伴侣（54%）。总体而言，46%的参与者同意/强烈同意他们愿意加入脸书群组。多变量逻辑回归确定过去6个月使用社交媒体是与加入脸书群组意愿独立相关的唯一变量（每天一次与从不或很少使用，比值比=1.82（0.86，3.88）；每天数小时与从不或很少使用，比值比=2.17（1.17，4.02），总体p值0.048）。
脸书有潜力触及更广泛的群体，使临床和转化研究的获取与参与更加普及。社交媒体基础设施和内容可传播至其他获得临床和转化科学奖的机构。
