产前咨询：脊髓脊膜膨出患者护理指南。
Prenatal counseling: Guidelines for the care of people with spina bifida.
机构信息
Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.
Department of Paediatrics, University of Toronto, Toronto, ON, Canada.
出版信息
J Pediatr Rehabil Med. 2020;13(4):461-466. doi: 10.3233/PRM-200735.
Abstract
As the diagnosis of Spina Bifida (SB) is often made prenatally, SB-specific prenatal counseling is needed. It is essential to provide information about medical care and lifelong impact of this diagnosis, treatment options available to women carrying fetuses affected, and resources that will assist in the care of individuals with SB. This article outlines the SB Prenatal Counseling Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB prenatal counseling is warranted.
摘要
由于脊柱裂 (SB) 的诊断通常是在产前做出的，因此需要进行特定于 SB 的产前咨询。提供有关医疗护理以及该诊断对患者一生的影响、为患有胎儿 SB 的女性提供的治疗选择，以及将有助于 SB 患者护理的资源的信息至关重要。本文概述了 2018 年脊柱裂协会第四版《脊柱裂患者护理指南》中的 SB 产前咨询指南，并承认需要进一步研究 SB 产前咨询。
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