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生命末期的医学化、痛苦和控制:深度持续姑息性镇静与协助死亡的相互作用。

Medicalisation, suffering and control at the end of life: The interplay of deep continuous palliative sedation and assisted dying.

机构信息

Norwegian University of Science and Technology, Norway.

University of Glasgow, UK.

出版信息

Health (London). 2022 Jul;26(4):512-531. doi: 10.1177/1363459320976746. Epub 2020 Dec 11.

Abstract

Medicalisation is a pervasive feature of contemporary end of life and dying in Western Europe and North America. In this article, we focus on the relationship between two specific aspects of the medicalisation of dying: deep continuous palliative sedation until death and assisted dying. We draw upon a qualitative interview study with 29 health professionals from three jurisdictions where assisted dying is lawful: Flanders, Belgium; Oregon, USA; and Quebec, Canada. Our findings demonstrate that the relationship between palliative sedation and assisted dying is often perceived as fluid and complex. This is inconsistent with current laws as well as with ethical and clinical guidelines according to which the two are categorically distinct. The article contributes to the literature examining health professionals' opinions and experiences. Moreover, our findings inform a discussion about emergent themes: suffering, timing, autonomy and control - which appear central in the wider discourse in which both palliative sedation and assisted dying are situated, and which in turn relate to the wider ideas about what constitutes a 'good death'.

摘要

医疗化是当代西欧和北美的临终和死亡的普遍特征。在本文中,我们重点关注临终医疗化的两个具体方面之间的关系:深度持续的姑息性镇静直至死亡和协助死亡。我们借鉴了一项定性访谈研究,该研究对象是来自三个辅助自杀合法的司法管辖区的 29 名卫生专业人员:比利时的佛兰德斯、美国的俄勒冈州和加拿大的魁北克省。我们的研究结果表明,镇静和协助死亡之间的关系常常被认为是灵活和复杂的。这与现行法律以及伦理和临床准则不一致,根据这些准则,两者是完全不同的。本文为研究卫生专业人员的意见和经验的文献做出了贡献。此外,我们的研究结果为正在出现的主题提供了信息:痛苦、时机、自主性和控制——这些主题在更广泛的关于姑息性镇静和协助死亡的讨论中占据核心地位,而这些主题又与关于构成“善终”的更广泛观念有关。

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