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1
Long COVID guidelines need to reflect lived experience.长期新冠指南需要反映实际经历。
Lancet. 2021 Feb 6;397(10273):455-457. doi: 10.1016/S0140-6736(20)32705-7. Epub 2020 Dec 23.
2
Facing up to long COVID.直面新冠长期症状
Lancet. 2020 Dec 12;396(10266):1861. doi: 10.1016/S0140-6736(20)32662-3.
3
Long COVID has exposed medicine's blind-spot.长期新冠暴露了医学的盲点。
Lancet Infect Dis. 2021 Aug;21(8):1062-1064. doi: 10.1016/S1473-3099(21)00333-9. Epub 2021 Jun 18.
4
A patient infected with SARS-CoV-2 over 100 days.一名感染 SARS-CoV-2 超过 100 天的患者。
QJM. 2021 Feb 18;114(1):47-49. doi: 10.1093/qjmed/hcaa296.
5
Travel from the United Kingdom to the United States by a Symptomatic Patient Infected with the SARS-CoV-2 B.1.1.7 Variant - Texas, January 2021.从英国到美国的旅行：由感染 SARS-CoV-2 B.1.1.7 变异株的有症状患者引起 - 德克萨斯州，2021 年 1 月。
MMWR Morb Mortal Wkly Rep. 2021 Mar 12;70(10):348-349. doi: 10.15585/mmwr.mm7010e2.
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Acute Appendicitis in Multisystem Inflammatory Syndrome in Children With COVID-19.新冠病毒感染儿童多系统炎症综合征中的急性阑尾炎
Pediatr Infect Dis J. 2020 Dec;39(12):e472-e473. doi: 10.1097/INF.0000000000002900.
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Medical assessment of fitness to dive after COVID-19.新冠病毒感染后潜水医学评估。
Int Marit Health. 2021;72(3):223-227. doi: 10.5603/IMH.2021.0041.
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Persistent symptoms up to four months after community and hospital-managed SARS-CoV-2 infection.社区和医院管理的SARS-CoV-2感染后长达四个月的持续症状。
Med J Aust. 2021 Apr;214(6):279-280. doi: 10.5694/mja2.50963. Epub 2021 Mar 3.
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Post-COVID-19 Symptom Burden: What is Long-COVID and How Should We Manage It?新冠后症状负担：什么是长新冠以及我们应该如何管理它？
Lung. 2021 Apr;199(2):113-119. doi: 10.1007/s00408-021-00423-z. Epub 2021 Feb 11.
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Cutaneous manifestations in SARS-CoV-2 infection (COVID-19): a French experience and a systematic review of the literature.严重急性呼吸综合征冠状病毒2感染（COVID-19）中的皮肤表现：法国的经验及文献系统综述
J Eur Acad Dermatol Venereol. 2020 Nov;34(11):e686-e689. doi: 10.1111/jdv.16775. Epub 2020 Jul 20.

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1
Consensus based recommendations for the management of post-COVID long-term sequelae (Long COVID): a regional perspective.基于共识的新冠后长期后遗症（长新冠）管理建议：区域视角
Front Med (Lausanne). 2025 Aug 6;12:1453167. doi: 10.3389/fmed.2025.1453167. eCollection 2025.
2
The impact of long COVID on UK healthcare workers and their workplace: a qualitative study of healthcare workers with long COVID, their families, colleagues and managers.新冠长期症状对英国医护人员及其工作场所的影响：对患有新冠长期症状的医护人员、其家人、同事及管理人员的定性研究
BMC Health Serv Res. 2025 Apr 9;25(1):519. doi: 10.1186/s12913-025-12677-x.
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Neurological sequelae of long COVID: a comprehensive review of diagnostic imaging, underlying mechanisms, and potential therapeutics.长期新冠的神经后遗症：诊断成像、潜在机制及潜在治疗方法的全面综述
Front Neurol. 2025 Feb 7;15:1465787. doi: 10.3389/fneur.2024.1465787. eCollection 2024.
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An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app.一项针对长期新冠病毒感染成年患者的适应性起搏干预措施：关于使用PaceMe应用程序患者体验的叙述性研究
J Patient Exp. 2024 Nov 10;11:23743735241272158. doi: 10.1177/23743735241272158. eCollection 2024.
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Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.长新冠患者生活体验的社会心理方面：定性研究的系统评价和主题综合。
Health Expect. 2024 Oct;27(5):e70071. doi: 10.1111/hex.70071.
6
Exploring the role of galectin-9 and artemin as biomarkers in long COVID with chronic fatigue syndrome: links to inflammation and cognitive function.探讨半乳糖凝集素-9 和 artemin 在长新冠伴慢性疲劳综合征中的生物标志物作用：与炎症和认知功能的关联。
Front Immunol. 2024 Sep 25;15:1443363. doi: 10.3389/fimmu.2024.1443363. eCollection 2024.
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Revealing the Hidden Impacts: Insights into Biological Aging and Long-Term Effects in Pauci- and Asymptomatic COVID-19 Healthcare Workers.揭示隐藏影响：了解少症和无症状 COVID-19 医护人员的生物衰老和长期影响。
Int J Mol Sci. 2024 Jul 24;25(15):8056. doi: 10.3390/ijms25158056.
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Clinical and Physiological Variables in Patients with Post-COVID-19 Condition and Persistent Fatigue.新冠后综合征及持续性疲劳患者的临床和生理变量
J Clin Med. 2024 Jun 30;13(13):3876. doi: 10.3390/jcm13133876.
9
Long COVID in Brain Health Research: A Call to Action.脑健康研究中的长期新冠：行动呼吁。
Brain Sci. 2024 Jun 8;14(6):587. doi: 10.3390/brainsci14060587.
10
Identifying the needs of people with long COVID: a qualitative study in the UK.识别长新冠患者的需求：英国的一项定性研究。
BMJ Open. 2024 Jun 19;14(6):e082728. doi: 10.1136/bmjopen-2023-082728.

本文引用的文献

1
Facing up to long COVID.直面新冠长期症状
Lancet. 2020 Dec 12;396(10266):1861. doi: 10.1016/S0140-6736(20)32662-3.
2
Long covid: doctors must assess and investigate patients properly.长期新冠：医生必须对患者进行恰当的评估和检查。
BMJ. 2020 Dec 2;371:m4583. doi: 10.1136/bmj.m4583.
3
"Just stay at home" was lonely and terrifying.“就待在家里”既孤独又可怕。
BMJ. 2020 Nov 5;371:m3807. doi: 10.1136/bmj.m3807.
4
COVID-19 is, in the end, an endothelial disease.COVID-19 归根结底是一种血管内皮疾病。
Eur Heart J. 2020 Sep 1;41(32):3038-3044. doi: 10.1093/eurheartj/ehaa623.
5
Management of post-acute covid-19 in primary care.初级保健中新冠后急性期的管理。
BMJ. 2020 Aug 11;370:m3026. doi: 10.1136/bmj.m3026.
6
Outcomes of Cardiovascular Magnetic Resonance Imaging in Patients Recently Recovered From Coronavirus Disease 2019 (COVID-19).COVID-19 患者近期康复后的心血管磁共振成像结果。
JAMA Cardiol. 2020 Nov 1;5(11):1265-1273. doi: 10.1001/jamacardio.2020.3557.
7
The emerging spectrum of COVID-19 neurology: clinical, radiological and laboratory findings.新型冠状病毒肺炎神经系统表现的研究进展：临床、影像学和实验室表现。
Brain. 2020 Oct 1;143(10):3104-3120. doi: 10.1093/brain/awaa240.

Long COVID guidelines need to reflect lived experience.

作者信息

Gorna Robin, MacDermott Nathalie, Rayner Clare, O'Hara Margaret, Evans Sophie, Agyen Lisa, Nutland Will, Rogers Natalie, Hastie Claire

机构信息

Brighton College, Brighton BN2 OAL, UK.

London, UK.

出版信息

Lancet. 2021 Feb 6;397(10273):455-457. doi: 10.1016/S0140-6736(20)32705-7. Epub 2020 Dec 23.

DOI:10.1016/S0140-6736(20)32705-7
PMID:33357467
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7755576/
Abstract
摘要