Chickasaw Nation Department of Health.
Southcentral Foundation.
Am J Bioeth. 2021 Oct;21(10):5-12. doi: 10.1080/15265161.2020.1865477. Epub 2021 Jan 15.
The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons-tribal communities experience harmful misrepresentation and generalizations disrespectful of AI/AN groups' heritage, cultures, and beliefs. The Belmont Report's research ethics principles are applied primarily to protect individual research participants. The principles of sovereignty and solidarity are argued to be important concepts in extending Belmont's research protections to tribal communities. Sovereignty, an expression of respect for autonomy at a group level, is the basis for tribal self-determination. The principle of solidarity provides an ethical underpinning for tribes' obligations to protect community interests and culture. Extension of Belmont through these principles should serve to minimize harms to AI/AN groups in research.
美国印第安人/阿拉斯加原住民（AI/AN）社区的研究历史一直以不道德的行为为标志，导致人们对研究产生不信任和不愿意参与的态度。伤害不仅限于个人——部落社区经历了有害的错误表述和对 AI/AN 群体遗产、文化和信仰的不尊重的概括。贝尔蒙报告的研究伦理原则主要适用于保护个人研究参与者。主权和团结原则被认为是将贝尔蒙的研究保护扩展到部落社区的重要概念。主权是对群体自治的尊重的一种表达，是部落自决的基础。团结原则为部落保护社区利益和文化的义务提供了伦理基础。通过这些原则扩展贝尔蒙报告应该有助于最大限度地减少研究对 AI/AN 群体的伤害。
